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Michiel
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| Posted: May 12 2010 at 2:17pm | IP Logged
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Hi. I've been on a blitz of getting some things done regarding my younger ds, 9. He is saddled with a load of problems, mainly ADHD and bipolar (but I think the bipolar is more accurately described as inflexiblilty and explosivity. Anyway, I am looking into also, dyslexia and a math learning disability. Pursuing these routes, I was referred to a highly respected university-run clinic in our state, and after talking on the phone was suggested to look into getting my son a central auditory processing test. After making a phone call, I learn that this is kind of like a surgery. I decided to wait a bit, do some research and then decide. Has anyone had this done? What can be learned from it? Is it helpful? Just wondering, as this will require several 2-3 hour trips, plus just the trauma of being put to sleep, etc.
I am hoping someone here has something to say about this one.
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Michiel
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Kathryn
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| Posted: May 12 2010 at 7:04pm | IP Logged
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I'm not sure if my perspective helps but I have thought about having the CAPD test done for my son (9 as well) and have done an enormous amount of reading and never was led to believe it was even remotely like surgery. What did they say that makes you think that? I know they do a full battery of hearing tests that go beyond "hearing" but again, I never, ever read about anything consisting of putting the child to sleep. How can they put the child to sleep if they want to see how he "processes" information?!
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Kathryn in TX
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Michiel
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| Posted: May 12 2010 at 9:52pm | IP Logged
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You know, it was just one of those things where I made a phone call thinking in my mind "oh, some questions and an examination" and then the lady on the phone says "surgery" and I go "wha?????" And she says that they will be needing to put him to sleep, and I'm so floored and surprised that I can't even think what to ask next, so of course, I don't. Before making another phone call, I thought I'd like to get more information. Online hasn't said anything much except that there may be reasons to think that my ds could fall under this CAP umbrella.
If I get up the nerve to call back and ask some more specific questions (and dh and I have decided to wait and ask ds's specialist about the whole thing) then I will be sure to post here about it.
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Michiel
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Kathryn
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| Posted: May 13 2010 at 8:44pm | IP Logged
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Yes, let me know. I'm curious. I go back and forth with my son as I see so many things that correspond but honestly they correspond with so many other possible diagnoses. I've just always struggled with possibly labeling him with what I think could be subjective diagnoses as opposed to hard and fast objective data (like a blood test to determine diabetes).
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Kathryn in TX
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Michiel
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| Posted: Oct 04 2010 at 5:31pm | IP Logged
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Hi.
It's been awhile. My younger son has been for 3 months at Cincinnati Children's Hospital. During his stay there, he underwent screening for CAPD, which he passed with flying colors, meaning that he has no CAPD issues. The diagnosis is intrusive, meaning needing sedation. And there is a rather comprehensive screening beforehand available, so the sedation wouldn't be in vain. Hope this helps.
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Michiel
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Kathryn
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| Posted: Oct 04 2010 at 8:23pm | IP Logged
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Read your blog a bit. So what exactly does that mean for him, Michiel, esp. in reference to your other post about him being in the 1%tile for processing speed? Just that he has a slow processing speed but doesn't mean he has processing disorder?
I wish you and your sons the best...it's such a tough struggle.
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Kathryn in TX
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Michiel
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| Posted: Oct 14 2010 at 12:00pm | IP Logged
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Hi, Kathryn,
Yes, that is exactly what it means. It means he gets it, but slowly. He can read and comprehend, but slowly. He can speak, but slowly. When he reads, he reads the same several words over and over, aloud, until he gets it enough to go forward. But the good part is that he understands it when he finally does go forward.
Also, when giving him a direction, the lag time between hearing what I say and doing what I wish is longer than for most kids, perhaps being interpreted as not wanting to comply, but instead, it's just slow processing.
Knowing all of this helps me work with him better.
The next big investigation is sensory integration, or sensory processing disorder, which he seems to be a poster child for. He is on the waiting list for evaluation.
Thank you for your kind wishes. We are moving forward, and so far, things are going very well. Not perfectly, but well enough to handle.
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Michiel
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4Real Forums : Special Blessings
Topic: Central Auditory Processing
