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amyable Forum All-Star


Joined: March 07 2005
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Posted: Feb 06 2009 at 12:24pm | IP Logged
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I just got back home after the follow up for my oldest dd's (11) psycho-educational evaluation. She was diagosed with both dyslexia and ADHD (well, ADD).
I'm not sure why I'm posting, LOL, except that I'm trying to process it all.
It's funny, they hardly told me anything I didn't already know from working with my daughter, but having them tell me in an "offical" way just hit hard. I feel like I need a good cry. Maybe it's just relief.
I know this is mild compared with what many of you deal with, so thank you for humoring me.
ETA: I forgot she was also diagnosed with a non-verbal learning disability. Now to see exactly what that means compared to dyslexia. I used to know this stuff...
__________________ Amy
mom of 5, ages 6-16, and happy wife of
The Highly Sensitive Homeschooler
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mom3aut1not Forum All-Star


Joined: May 21 2005
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Posted: Feb 06 2009 at 12:38pm | IP Logged
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Amy,
I'd say that your reaction -- wanting a good cry -- is perfectly normal. I know that I had such reactions to my kids' diagnoses even when I was expecting them. (There was some relief in a couple of the diagnoses as well.) For me it was like the death of a dream. Don't worry. It's just a step to a better adjustment to reality, and one that will help you help your dd better.
I want to add that although *that* dream died, hope remained, and new dreams came.
From the mom of a very enthusiastic Cub Scout...
In Christ,
__________________ Deborah
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amyable Forum All-Star


Joined: March 07 2005
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Posted: Feb 06 2009 at 1:01pm | IP Logged
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Thank you Deborah! It's funny, I went to *them* saying, "I think my dd has dyslexia and maybe ADD." And then they come back saying, "Your dd has dyslexia and ADD" and I'm just
Women.
I'm so thankful to have some concrete suggestions now, though!
__________________ Amy
mom of 5, ages 6-16, and happy wife of
The Highly Sensitive Homeschooler
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folklaur Forum All-Star

Joined: Feb 07 2005 Location: N/A
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Posted: Feb 06 2009 at 1:27pm | IP Logged
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But - at least - now you know! Now you don't have to wonder, or second guess yourself, etc. Now you can find strategies to help you both.
But big hugs anyway, cuz I can relate, and I'm just trying to cheer you up.
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mom3aut1not Forum All-Star


Joined: May 21 2005
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Posted: Feb 06 2009 at 4:41pm | IP Logged
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Amy,
I missed the part about the NLD -- IIRC that is like a part of autism -- the missing social skills part. I would be happy to discuss materials for that with you if you are interested.
In Christ,
__________________ Deborah
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Anneof 5 Forum Pro


Joined: June 10 2006 Location: N/A
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Posted: Feb 06 2009 at 5:42pm | IP Logged
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Amy,
I know how you feel. I have had two of my children go through testing and I always had an emotional reaction(like grief or just mental exhaustion) afterwards for a while. It is hard!! But it is good to have your suspicions confirmed and to get an idea of where to turn for help. It is nice just knowing if I am reading the right books and trying the most useful suggestions in helping my kids. I have one who was also diagnosed with ADHD and possible NLD...they said they couldn't diagnose that for certain until we tried meds and we are not ready to do that yet. There is a lot on the web about NLD.
It will all work out. My best to you!
Anne
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BrendaPeter Forum All-Star

Joined: Feb 28 2005
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Posted: Feb 07 2009 at 5:59am | IP Logged
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I sort of figured out a couple of weeks ago that my son is dyslexic. We seriously considered having him tested but decided it's not worth it. Initially I was overwhelmed & a bit depressed. Then, as I worked with him, I was pretty blown away with what he does know! I bet that will be your reaction as well!
__________________ Blessings,
Brenda (mom to 6)
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JuliaT Forum All-Star

Joined: June 25 2006
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Posted: Feb 07 2009 at 1:18pm | IP Logged
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Oh, Amy, I am hugging you in my heart. I haven't had my children tested but after reading much about dyslexia and talking to a dyslexic specialist, I am certain that my children have various levels of dyslexia.
Right now you feel broadsided, even though deep down you knew it all along. To hear someone say those words out loud just takes everything to a diffeent level.
When I first was able to take my head out of the sand, I was so overwhelmed. I did not know how I was ever going to deal with this. How could I ever teach my children? I fell in a heap and I prayed. I felt such comfort. I felt God telling me that we were going to take one step at a time and He was going to be with me all of the way.
The fog lifted. I was able to figure out what program to get and how to teach my children in a way that works for them. I should say that the latter is a process. I am still figuring this out through trail and error but I am getting better at it.
Give yourself some time. When you feel stronger, the answers will come to you and you will find the right path for your dd.
At the beginning of this school year, my ds (8) could not even read Level 1 readers. Yesterday, he read a math storybook to me. Wow! I began to cry when he finished. I am so proud of him. We have a long, long way to go but yesterday gave me encouragement that he can do it. Your path will be full of these kinds of encouragments.
Blessings
Julia
mom of 3 (9,8,6)
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KC in TX Forum All-Star

Joined: Aug 05 2005 Location: Texas
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Posted: Feb 07 2009 at 9:20pm | IP Logged
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I've been there as well, Amy. Even as I knew the diagnosis would be right, I was devastated (and relieved--so I really am not a bad parent). Big hugs to you.
__________________ KC,
wife to Ben (10/94),
Mama to LB ('98)
Michaela ('01)
Emma ('03)
Jordan ('05)
And, my 2 angels, Rose ('08) and Mark ('09)
The Cabbage Patch
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momtomany Forum All-Star


Joined: Feb 17 2005 Location: Pennsylvania
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Posted: Feb 16 2009 at 12:35pm | IP Logged
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Amy,(((hugs))). Every time I've had my John tested for something and it comes back with poor results, I feel like I'm crushed yet again. But homeschooling has been such a blessing. And every time he reaches another milestone that some expert said that he wouldn't,it is such a wonderful feeling!
God chose you to be the mother of your precious dd. With His help, you will manage.
__________________ Mary Ann in PA
wife to MIchael, mom to Elizabeth, Becca, Tim, Peter, Andrew, Sarah, Matthew, John, Leah and Joseph
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4 lads mom Forum All-Star

Joined: Sept 26 2006
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Posted: Feb 18 2009 at 8:38am | IP Logged
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Right there with you, Amy!! My son has the same dx, and is making awesome progress with a private tutor....praying!!
__________________ Mom of four brave lads and one sweet lassie
Scenes From This and That
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