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Cherishedheart
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Joined: Aug 03 2009
Location: Australia
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Posts: 91
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| Posted: Oct 10 2009 at 12:41am | IP Logged
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Dear All,
Firstly I hope this is the right forum to post this in,if not can someone direct me to the right one.
I am wondering if any of you have been down this road we are taking with our daughter, Moran
To save time I am linking to my blog about her.
http://cherishedheartsathome.blogspot.com/2009/08/what-next- or-pity-party.html
http://cherishedheartsathome.blogspot.com/2009/08/our-eeg-ex perience.html
I am frustrated in knowing if we are doing the right thing with pursueing medical/mental health help. Or should I just follow up the seizures alone, and if me see a need to begin medication are there alternative ways to medicate -not with prescribed medicine.
In regards to her anxiety I am trying to get hold of this book: Parenting Your Anxious Child With Mindfulness and Acceptance: A Powerful New Approach to Overcoming Fear, Panic, and Worry Using Acceptance and Commitment Therapy,
and my dear friend Erin http://sevenlittleaustralians.blogspot.com/ bought me this one : The Out of Sync Child in regards to her sensory issues.
My question is:
Do these provide me with enough information to deal with this ourselves? Should we continue down the Mental Health and OT track.
Has anyone had these issues to deal with either singularly or in combinations?
Is there anything I should be on the lookout for ?
I am not entirely comfortable wtih the professionals as I have a mistrust of their motives! Probablly not fair but I am a little familiar with these people looking for cases of abuse etc and just can't be at ease with them totally.
I should also say if any one is interested I have posted a little on this in the Prayer request on the forum,and we had prayer request before for her.
I am trying to elliminate to much typing and save time.
I hope you all understand and do not mind doing the linking 
I pray some of you would be able to take the time to help me here or guide me in the right direction.
God Bless
__________________
 Gae
Wife-Stephen
Mummy:Kynan Braedon Autumn Eden Saxon Vellvin Rogan Moran Myffwyn Corbyn Arwen
baby Trahaearn
Cherished Hearts At Home
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Willa
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Joined: Jan 28 2005
Location: California
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| Posted: Oct 10 2009 at 2:41pm | IP Logged
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Hi Gae,
This is definitely the right forum. I will be thinking and praying about your situation with your precious daughter and I hope to be able to respond but in the meantime I thought I would just put the link to the earlier prayer request that you mentioned.
Prayers for Moran
I hope others will chime in because I'm sure others have had experience with anxiety disorders and epilepsy.
__________________
AMDG
Willa
hsing boys ages 11, 14, almost 18 (+ 4 homeschool grads ages 20 to 27)
Take Up and Read
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JuliaT
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| Posted: Oct 10 2009 at 3:22pm | IP Logged
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Gae,  my heart is hurting for you. I cannot give you any helpful advice as my children's issues are on a much lesser level than Moran's (my children are dyslexic and have sensory issues,) but I understand the crossroads you are at right now: can I do this on my own or do I need the professionals. When I was at this point, all I could do was pray that God would show me the next step, whether that be with professionals or on my own. Of course, He showed me what that next step was going to be.
I don't know if the books will help but I do know that when I started reading The Highly Sensitive Child, I started crying bucketloads of tears because, finally, finally! there was a name for the little ideosyncrasies that my children had. Not only that but there were other children that were similar to my own. That was a huge awakening for me. So those books just might help shed some light on Moran's issues.
I'm sorry that I cannot help you more. Please know that I will be praying for Moran and for you.
Blessings,
Julia
mom of 3 (10,8,6)
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Karnak
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| Posted: Oct 10 2009 at 8:14pm | IP Logged
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HI Gae
My advice to you is pretty simple. Get another opinion if you are not happy. Try a pediatrician as many of them are experienced in epilepsy. Go vi your GP an asked about a Mental health plan as anxiety fits under that.
. I read you blog on and off and did wonder if our daughter is on the autism spectrum with sensory disintegration disorder. I have a son with autism and he has sensory issues
I would go down the path of medication for her epilepsy as seizures are not much fun and can cause brain damage, the really major ones which she does not need. Mediation brings the seizures under control usually and you may find she grows out ot them as some kids seem to do. Try for her sensory issues as she sounds like she needs OT. Try OT as it should help with the sensory issues. However you will find Tassie services are noted for being hopeless which is n understatement as many of the public therapy service Australia wide can only be described as abysmal. You may need to go private and find a good OT if that is possible where you are. Some OTs are great with sensory issues many have no idea. I f you daughter is diagnosed as being on the autism spectrum you may be able to access the current funding being provided under Helping kids with autism, if not she may be able to get the OT funded under Medicare rebates with a GP mental health plan. Seeing a psychologist may help her cope with her sensory issues and learn strategies so cope with them. Join you local Epilepsy Association as you will find good advice and help there on who to see and what is available in medication etc.
You need to be bloody minded and beome a good adovocate for Moran or otherwise she will get nothing. She is lucky to have many siblings as there she will learn how to deal with issues in a sympathetic environment.
Karnak
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At_His_Feet
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Joined: April 28 2007
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| Posted: Oct 12 2009 at 3:55am | IP Logged
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Great advice from Karnak.
A good OT will help tremendously. The Out of Sync Child, is a great book, but an OT assessment will be able to pin point what is happening with Moran and be able to give you therapy ideas for you that take the guess work out. When you're choosing an OT, ask if they have any experience with sensory intergration.
When we were living in Armidale (small town) we had a FANTASTIC public OT. They are out there sometimes.
I haven't read it, but The Out of Sync. Child Has Fun might be another book worth looking into.
Praying for you.
Tricia.
__________________
Tricia
Mum to 3 boys 17, 15, and 10.
Do whatever He tells you
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Waverley
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| Posted: Oct 13 2009 at 9:01pm | IP Logged
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Gae,
I hear the pain in your posts and my heart hurts for you. I'm glad you posted so that I and the other moms here with special-needs children can hold you up as you travel this journey.
We too have been on a journey with our special needs children one of whom suffers with anxiety and sensory processing difficulties. For us, we had some testing and assessments done and received the results. We agreed with some of the results and recommendations and rejected others. We read, read, read and sought second opinions. We also prayed. We prayed alone and we prayed together.
When we reached a decision about a course of treatment DH and I agreed to pursue that course of treatment with all of our energy. We worked with the professionals to develop goals and milestones. We decided on a time period that would give the treatment option enough time to work. Once we agreed on the treatment option, we agreed to stop second-guessing that option and allow time for that option to work. It was hard. It was tempting to continue to research and jump treatment programs if I didn't see results. I have had to learn patience.
Please keep us posted. I will keep you in my prayers.
__________________
Waverley
wife to Dh for 19 years, dd (16), dd (11), dd (8), ds (6), dd (4), dd (9-13-1996)
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4Real Forums : Special Blessings
Topic: Advice Please
