Oh, Dearest Mother, Sweetest Virgin of Altagracia, our Patroness. You are our Advocate and to you we recommend our needs. You are our Teacher and like disciples we come to learn from the example of your holy life. You are our Mother, and like children, we come to offer you all of the love of our hearts. Receive, dearest Mother, our offerings and listen attentively to our supplications. Amen.



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LucyP
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Posted: Feb 20 2008 at 4:09pm | IP Logged Quote LucyP

I'm checking back in (although not doing too well with the internet fast generally and desperately trying not to look at any other threads!) to ask advice etc.

Our son has been telling us for months that his ears don't work properly. He doesn't hear is (even offering chocolate or a story, not just giving orders!), sits on top of a cd player or radio to listen to it, and answers almost every remark by us with "huh?". We got him a hearing assessment today - the result was that his hearing is "better than perfect".

Discussing it with the social worker who will do his theraplay (another whole source of grief to us) she at once said it sounded like a sensory integration issue. We looked it up on line and yes, many of the suggestions of what a SID child might be like are true of our son.

This is so new to us. To be honest, I don't know that we even necessarily "believe in it". I just thought "oh well, ds just doesn't like clothes and crowds and can't hear and is always on the fidget and that's just his personality".

Please, if you have experience of this sort of diagnosis and things to do to help, can you share? I've tried to start thinking of ways to gently stimulate his senses, because from what I read online that seems to be what you do - he had a joyous afternoon playing with gloop, and then a tastebud stimulating stor fry for supper - but I just feel lost.

(and please move this to somewhere better, dear moderators - I wasn't sure where to put it and didn't think I could handle looking through the site without clicking on threads! I'm very weak. Which makes the idea of being a parent who has to try harder than we already are very scary to me...)
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Willa
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Posted: Feb 28 2008 at 9:39am | IP Logged Quote Willa

I'm sorry to be late answering this.   I have been more irregular checking threads during Lent too.

I did not know that hearing issues could be related to sensory integration.   I guess it makes sense because the vestibular system, which helps with balance and "grounding", is also directed by the inner ear?

Do youthink that he is a sensory avoider? That is, does he tend to have trouble with overstimulation, or does he seek it out?   

I know that for my 2 children with sensory issues -- they both have trouble filtering out sensation.    That can include hearing so sometimes they have a lag between hearing and actually "processing" what they hear.    And perhaps for your son the auditory input has to compete with the barrage of other sensations, so he has to sit near the CD and seems not to recognize verbal messages right away?

One simple method that has worked with my two is just a touch (firm, not light since SID children are often irritated or frightened by light touch) or visual signals to help them with the auditory input.   For example, when giving a task or offering chocolates : D I make sure they are prepared to listen.   

Also, I have heard that music helps organize the child's input -- my son's OT has experimented with this Hemi Sync -- it did not show many results for my son but then, he is deaf in one ear, so he can't get stereo input and that is seemingly what the method depends upon.

I hope this helps a bit -- please feel free to describe more what you are dealing with.

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