4Real Forums: Wearing braces, and Botox

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Topic: Wearing braces, and Botox

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Willa
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Joined: Jan 28 2005
Location: California
Online Status: Offline
Posts: 3881

Posted: April 16 2007 at 8:54pm \| IP Logged

Aidan, who is 7, has two braces -- a DAFO (fitted orthotic) for his left leg and a sort of flexible splint for his left arm. They are uncomfortable for him especially when it's hot, and sometimes he takes them off (and it takes a while to track down where he has put them!).   Plus, he has eczema and his skin condition is often aggravated by the materials.

So I was wondering:

Are there any other moms with brace-fitted children out there? Have you found any tips for making the experience pleasant for them, and for encouraging them to keep the things on?   Have you any tips to motivate ME in spite of these difficulties? such as success stories from wearing orthotics?

Also, has anyone had kids who have been given Botox injections for hypertonia?   Aidan is going to be evaluated soon for injections.   It means more frequent PT visits which are an expense, and a considerable time commitment to step up therapy while the Botox is having effect.   The advantages are that he might be able to somewhat break the lopsided walking pattern he is in; he could learn to move more efficiently, and it might help a bit with his motor praxis difficulties.   Any thoughts or experience with this?

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AMDG
Willa
hsing boys ages 11, 14, almost 18 (+ 4 homeschool grads ages 20 to 27)
Take Up and Read

Maria B.
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Joined: Jan 16 2006
Location: Virginia
Online Status: Offline
Posts: 544

Posted: April 16 2007 at 10:06pm \| IP Logged

Hi Willa:

I have two girls wearing braces 21 hours a day for their scoliosis. They do okay in the cold weather, but the warm weather months are killers. Since they are 15 and 13 they keep track of the hours the brace is worn, but I have told them they can be a bit lenient with themselves in the summer. Both of them wear "body socks", essentially like a long t-shirt under the brace and use a lot of baby powder. My 15-yr old does have a problem with eczema too in certain spots. We have had to get a prescription cream for that. The orthotist was also able to apply special foam pads on the places where the brace was causing the eczema to appear. All in all their is no one solution.

Good luck!

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Maria in VA
Proud Mom to 10 Great kids!

Chari
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Joined: Jan 28 2005
Location: California
Online Status: Offline
Posts: 5228

Posted: April 17 2007 at 12:33am \| IP Logged

I have no idea, Willa......but you and Aidan have our prayers....

your girls do, too, Maria

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Chari...Take Up & Read
Dh Marty 27yrs...3 lovely maidens: Anne 24, Sarah 20 & Maddelyn 17 and 3 chivalrous sons: Matthew 22, Garrett 16 & Malachy 11

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