| Author | |
Jess
Forum Pro
Joined: July 25 2006
Online Status: Offline
Posts: 372
|
| Posted: Dec 31 2008 at 8:52am | IP Logged
|
 |
|
My 5yr old dd has mild scoliosis that we found at her checkup back in May. So the dr said we needed to get her back xrayed every six months to make sure it wasn't getting worse. In May it was a 9% curve. We went back not long ago for another xray and the dr just called and said that now it is a 12.1% curve. I know those are small percentages but the getting worse is worrying me. She is only 5 and has a lot of growing to do and the dr said it gets worse usually in big growth times. The dr said she isn't worried yet and she just wants us to come back in six more months for another xray.
Does anyone have experience with scoliosis?
Thanks
__________________
God bless,
Jess
+JMJ+
wife to dh('96)
mama to dd(13), dd(11), ds(9), dd(6), and dd (2), and baby girl born Sept 14!
star cottage
|
| Back to Top |
|
| |
Anne
Forum Pro
Joined: May 21 2007
Location: Tennessee
Online Status: Offline
Posts: 368
|
| Posted: Dec 31 2008 at 9:31am | IP Logged
|
|
|
YES!!!!!! We are dealing with a new diagnosis right now. My dd is 9 almost 10 and we found this out due to a change in the way she walked. We thought one leg was growing faster than the other. It turns out that she is just decompensating for her curve.
Right now she has a 12 degree curve and her spin is also twisting. Our Dr.'s are also saying wait and see. We have been going to physical therapy twice weekly to try to improve her walking gait. She limps a lot and complains sometimes of her hip hurting. I am not satisfied with just a wait and see attitude. We are going for a second opinion soon.
The first orthopedists says just xray every 3 months. I just want her to feel no pain and to walk comfortably.
She has been shying away from some play because she is afraid of getting hurt, left behind, or teased. My dd is so very outgoing and We just can't let this hold her back.
We have seen some research on Vertebral stapling. I am not a big fan of using surgery to fix things however I am not so closed minded that I will not even research all possibilities. My main focus has been to search the internet for anything related to scoliosis and to give my dd as much support and care as I can.
PM me if you want to stay in touch about this issue. I will keep posting about further developments.
Blessings
__________________
Anne in TN
WIFE to Brett (91)
MOM to Rebecca(97), Catherine (99), Grace (99), Stephen (00) & 2 Angels in Heaven.
|
| Back to Top |
|
| |
Anne
Forum Pro
Joined: May 21 2007
Location: Tennessee
Online Status: Offline
Posts: 368
|
| Posted: Dec 31 2008 at 9:41am | IP Logged
|
|
|
Here is a link to my post before the diagnosis.
__________________
Anne in TN
WIFE to Brett (91)
MOM to Rebecca(97), Catherine (99), Grace (99), Stephen (00) & 2 Angels in Heaven.
|
| Back to Top |
|
| |
Jess
Forum Pro
Joined: July 25 2006
Online Status: Offline
Posts: 372
|
| Posted: Dec 31 2008 at 10:53am | IP Logged
|
|
|
Thank you Anne! I have done a little bit of research and I also found that the curve has to be 25% to be considered "significant". I guess I am just worried that since she is so young and it has increased in 6 months, that eventually she will be in the "significant" category, especially if she hits a big growth spurt.
Thanks for linking to your previous post, it was helpful.
__________________
God bless,
Jess
+JMJ+
wife to dh('96)
mama to dd(13), dd(11), ds(9), dd(6), and dd (2), and baby girl born Sept 14!
star cottage
|
| Back to Top |
|
| |
LisaD
Forum All-Star
Joined: Dec 27 2005
Location: California
Online Status: Offline
Posts: 526
|
| Posted: Dec 31 2008 at 6:20pm | IP Logged
|
|
|
DD was diagnosed 3 years ago, at the age of 6. She has to be x-rayed yearly, but so far there has been no significant change. The orthopedist told me that often during puberty, they see a big increase because of growth spurts, so we may increase the x-ray/checks as she grows.
Other than that, we just wait and see.
__________________
~Lisa
Mama to dd(99), ds(01), ds(03) and ds(06)
|
| Back to Top |
|
| |
Kathryn UK
Forum All-Star
Joined: Feb 27 2005
Location: England
Online Status: Offline
Posts: 924
|
| Posted: Jan 02 2009 at 4:16pm | IP Logged
|
|
|
My dh has severe scoliosis - at its worst, a 90 degree curve, corrected to around 65 degrees following two surgeries for spinal fusion, insertion of a Harrington Rod, and addition of further rods. Thanks to his internal scaffolding, the scoliosis really causes him few problems. He suffers from back pain if he overdoes things physically, or if he is stressed, but not to the point where it affects his quality of life.
As scoliosis runs in his family our daughters are monitored regularly. My eldest dd has a perfect spine, but my second dd (10yo) has a small curve - 9 degrees, but it has not increased over the last year, and the doctor is not concerned about it beyond wanting to continue to monitor her. He says people are rarely symmetrical and some curvature is very common. My dh's nephew also had a small curve when he was quite young, and it corrected itself.
From our experience is is a case of waiting and watching. Most small curves will not progress to the point where they become significant. If your dd does eventually develop a significant curve, there are good treatment options. My dh is a good advertisement for surgery in the (unlikely) event that it becomes necessary. His only regret is that he didn't have it done earlier - he waited until his early twenties, and would probably have had a better outcome if it had been done in his teens.
__________________
Kathryn
Dh Michael,  Rachel(3/95) Hannah(8/98) Naomi(6/06)  (11/07)
The Bookworm
|
| Back to Top |
|
| |
juststartn
Forum All-Star
Joined: Jan 17 2007
Location: Oklahoma
Online Status: Offline
Posts: 1321
|
| Posted: Jan 02 2009 at 8:17pm | IP Logged
|
|
|
I have had a problem with it--I was dx'd in my early teens--I don't know the degree, it was mild when it was caught (at a screening in my PE class, of all places)...
Mine was supposedly due to the way I would lay on the floor and read (alot--LOVED to read (still do, but prefer a chair, now, lol)...propped up on one hand, leaning on my elbow...
Anyway, I stopped doing that, and it never came up again until I was getting ready to get an epidural with dd#1...lol...it made it a trifle more difficult for it to be done, but not impossible.
Rachel
__________________
Married DH 4/1/95
Lily 3/11/00
Helena(Layna) 5/23/02
Sophia 4/19/04
John 5/7/07
David 5/7/07
Ava Maria, in the arms of Jesus, 9/5/08
|
| Back to Top |
|
| |
Jamberry77
Forum Pro
Joined: Feb 15 2005
Online Status: Offline
Posts: 243
|
| Posted: Jan 06 2009 at 9:56am | IP Logged
|
|
|
Jess,
No expert advice, but I do recommend that you find ways for her to get strong and stay strong, even through the puberty years. Maybe find a physical therapist who can recommend some good exercises, and some sports that would keep her strong. I have mild scoliosis but it seems strong muscles really help to keep the spine closer to where it ought to be... weak muscles allow the spine to curve more, in my opinion. (I'm finding that the T-Tapp exercises are helping me, at this stage in my life.)
A first cousin of mine has a rod in her back (she's 37 now) and has done fine with it...she does do her exercises from her PT every day.
Hope this helps.
__________________
Kelly, mom to 9th and 5th graders
|
| Back to Top |
|
| |
Kathryn UK
Forum All-Star
Joined: Feb 27 2005
Location: England
Online Status: Offline
Posts: 924
|
| Posted: Jan 07 2009 at 3:50am | IP Logged
|
|
|
Jamberry77 wrote:
| No expert advice, but I do recommend that you find ways for her to get strong and stay strong, even through the puberty years. |
|
|
I second that. One reason our daughters do ballet is because it helps with posture and back strength.
__________________
Kathryn
Dh Michael, Rachel(3/95) Hannah(8/98) Naomi(6/06) (11/07)
The Bookworm
|
| Back to Top |
|
| |
|
|
Forum Locked) 
4Real Forums : Mothering and Family Life
Topic: scoliosis
