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4 lads mom
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| Posted: Oct 27 2010 at 10:11pm | IP Logged
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Hi Lily Fans, Far and Wide!
Lily wanted to share with you her latest look
Keep praying she does well in the next few weeks, and we might be in the hospital, right before or after Thanksgiving, getting her trach out. We are all excited she is doing so well. I found some pictures of her during the worst of her jaw distraction. I am so, so thankful that is all done.
Thanks for your prayers!!! 
Update!! 11/17--So, the doctor just called me and we are taking Lily in on December 8th (!!!) for Lily’s decannulation study. Oh My.....I am all a flutter. Isn’t that a great Feast Day???
She has tolerated her cap pretty well, with a few setbacks last week with, what I think, were allergy issues or a slight cold. BUT, she is doing fine now, so we’ll see if we can keep her healthy for three weeks and possibly get her trach out before Christmas......holding my breath as I just wrote all of that. 
Thanks so much for your kindness and prayers!
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Mom of four brave lads and one sweet lassie
Scenes From This and That
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Willa
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| Posted: Oct 27 2010 at 10:24pm | IP Logged
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Great news! Lily sure has a lot of personality -- amazing what our children can get through and still keep their bounce and spirit!
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AMDG
Willa
hsing boys ages 11, 14, almost 18 (+ 4 homeschool grads ages 20 to 27)
Take Up and Read
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guitarnan
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| Posted: Oct 27 2010 at 11:24pm | IP Logged
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Lily has many, many fans...some of us wish we weren't so wide...
Your sweet daughter is going to set the world on fire! She has so much personality! (And those blue eyes...I'm just sayin'!) I'll be praying extra hard for Lily these next few weeks. I am sure she's loving the freedom from medical devices...
May God bless Lily and your entire family these next few weeks, as you support her in her efforts to breathe, grow and learn.
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Nancy in MD. Mom of ds (24) & dd (18); 31-year Navy wife, move coordinator and keeper of home fires. Writer and dance mom.
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Carole N.
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| Posted: Oct 28 2010 at 3:02am | IP Logged
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She is so sweet! And what a great personality! I am glad that all is going well and I will continue to pray for you all during the next few weeks!
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 Carole ... in Wales
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stacykay
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| Posted: Oct 28 2010 at 3:27am | IP Logged
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She is so cute! I am so happy to hear this latest! Will pm about your next hospital visit... 
In Christ,
Stacy in MI
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SeaStar
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| Posted: Oct 28 2010 at 5:50am | IP Logged
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I was wondering how she is doing. Thanks for this great update- what a cutie!
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Melinda, mom to ds ('02) and dd ('04)
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Nique
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| Posted: Oct 28 2010 at 10:25am | IP Logged
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What a courageous little girl! Thank you for sharing your pictures with us Lily! Keeping you and your family in our prayers
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I had always thought that once you grew up you could do anything you wanted - stay up all night or eat ice cream straight out of the container. ~Bill Bryson
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JaysFamily
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| Posted: Oct 28 2010 at 12:46pm | IP Logged
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Yay for Lily! I'm so glad to hear she's doing so well!
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In Christ,
Jaysfamily
wife to Jay
mother to DS(5)
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Servant2theKing
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How adorable! Keeping Lily and your whole family in our prayers!
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All for Christ, our Saviour and King, servant
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VanessaVH
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Aww! Thanks for sharing the pictures!!
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ALmom
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| Posted: Oct 28 2010 at 5:59pm | IP Logged
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Oh, thanks for sharing the pictures. We certainly will pray that things continue to go well. And happy to rejoice with you.
Janet
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4 lads mom
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| Posted: Oct 28 2010 at 10:34pm | IP Logged
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guitarnan wrote:
some of us wish we weren't so wide...
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 Oh Boy....right there with you.....Dark Chocolate Snickers are taking their toll on me.....no fair!!!
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Mom of four brave lads and one sweet lassie
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hylabrook1
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| Posted: Oct 29 2010 at 8:58am | IP Logged
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What great news! *Lily prayers* continue. She is soooo cute!
Peace,
Nancy
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Mackfam
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| Posted: Oct 29 2010 at 9:06am | IP Logged
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I took a peek yesterday...but I'm only just getting a chance to come over and tell you how utterly adorable she is!!!
My prayers absolutely continue that this great forward momentum continues!!!
...I'm just  beaming for you and Lily and family!!
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Jen Mackintosh
Wife to Rob, mom to dd 19, ds 16, ds 11, dd 8, and dd 3
Wildflowers and Marbles
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teachingmyown
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She looks great! What a cutie! She is always in our prayers.
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In Christ,
Molly
wife to Court & mom to ds '91, dd '96, ds '97, dds '99, '01, '03, '06, and dss '07 and 01/20/11
Remembering Today
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Grace&Chaos
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| Posted: Oct 29 2010 at 12:22pm | IP Logged
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How adorable, first time I read about her, but definetely a fan now!  Will pray for her and your family.
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Blessings,
Jenny
Mom to dds(00,03) and dss(05,06,08,09)
Grace in Loving Chaos
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JennGM
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| Posted: Oct 30 2010 at 8:51am | IP Logged
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She is just absolutely adorable! So happy for her progress!
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Jennifer G. Miller
Wife to  & ds1  '03 & ds2  '07
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4 lads mom
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| Posted: Nov 17 2010 at 3:12pm | IP Logged
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Update in OP
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Mom of four brave lads and one sweet lassie
Scenes From This and That
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Angie Mc
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| Posted: Nov 17 2010 at 3:15pm | IP Logged
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WOW! I have december 8th on my calendar!
Love,
Lily Fan
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Angie Mc
Maimeo to Henry! Dave's wife, mom to Mrs. Devin+Michael Pope, Aiden 20,Ian 17,John Paul 11,Catherine (heaven 6/07)
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Mackfam
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| Posted: Nov 17 2010 at 3:41pm | IP Logged
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Angie Mc wrote:
WOW! I have december 8th on my calendar!
Love,
Lily Fan |
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Me too!!!  I'm thrilled! And sending for all of you!
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Jen Mackintosh
Wife to Rob, mom to dd 19, ds 16, ds 11, dd 8, and dd 3
Wildflowers and Marbles
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4Real Forums : Tea and Conversation
Topic: Just wanted to share the latest-UPDATE OP
