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Subject Topic: Stargardts Disease? Post ReplyPost New Topic
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Lisbet
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Posted: Jan 23 2010 at 2:15pm | IP Logged Quote Lisbet
Is anyone familiar with this? We had our 10 year old in for a regular eye exam, and apparently he found some deposits in one of his eyes - dursen? It is a red flag for Stargardts Disease so he referred him to a pediatric opthamologist.

Of course I googled, and it doesn't look good...seems that it is genetic and untreatable, and ultimately causes blindness. I'm trying not to stress about what has not yet come...

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JodieLyn
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Posted: Jan 23 2010 at 2:27pm | IP Logged Quote JodieLyn
I haven't heard of it.. I do know there are herbal things you can do to support the eyes.. bilberry being the one I can think of off the top of my head, oh and betacarotene.

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CrunchyMom
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Posted: Jan 23 2010 at 2:28pm | IP Logged Quote CrunchyMom
There is a woman in our Catholic Homeschool group whose daughter has this condition. I don't know much about it, but I'd be happy to give her your contact info if you needed to talk to someone.

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4 lads mom
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Posted: Jan 23 2010 at 2:49pm | IP Logged Quote 4 lads mom
Don’t panic, yet, Lisa. I have had deposits just show up in my ’30’s....they kept talking about macular degeneration.....I have seen a few retinal specialists.....and it is fine now, in a holding pattern. They have all insisted I probably “always” had this....but no other docs found it in previous exams in my ’20’s....sort of weird. Can you take him to peds ophthalmologist at U of M? I wasn’t sure how close you are to moving...if that is a possibility?

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