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Karen T
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| Posted: July 05 2006 at 2:37pm | IP Logged
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I wrote this out last night, but I don't see that it posted anywhere somehow.
Anyway, my friend, who is also my boss, is married to Joe, who has muscular dystrophy, diagnosed in his late 20's. At the time they were told it wouldn't impact his life severely for a long time, but it has progressed far faster than they were led to believe. He is mid-40's now and has been in a wheelchair 2 yrs and has heart problems from it. He's now in ICU b/c his diaphragm muscles are failing and he can't breathe. The doctor is trying a by-pap machine (I think that's what it's called; it's not a C-pap) to get his CO2 levels down (they're extrememly high and he is barely conscious) but if not, they will need to put in a permanent tracheostomy and put him on a ventilator. Needless to say, Nancy is quite stressed right now; she was not prepared to have to deal with this so soon. They are not sure if they will go the vent route if that becomes necessary; Joe is telling Nancy it's *her* decision and that makes it even harder for her. They have two boys, 9 and 14. Please pray for a miracle for Joe and peace for Nancy.
Karen T
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Rebecca
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| Posted: July 05 2006 at 4:09pm | IP Logged
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Karen, I am praying for Joe right now.
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Angela F
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| Posted: July 05 2006 at 6:33pm | IP Logged
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Oh Karen, I'll be praying for Nancy and her husband Joe and for their children. I'm sure they're stressed, too...
God bless,
Angela
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Mom to 7 blessings - welcome to Hanna Clare 1/19/10
"‘Great’ holiness consists in carrying out the ‘little’ duties of each moment."
St. Josemaria Escriva
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Wendy
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Praying for Joe and Nancy.
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God bless,
Wendy
Wife to Chris
Momma to Grace, Sam, Ben, Maggie, Mary Cate, and Jamie
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Victoria in AZ
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| Posted: July 06 2006 at 12:33am | IP Logged
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Praying! St. Joseph please intercede for Joe and Nancy. May Our Lady put her mantle around Nancy as well.
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Your sister in Christ,
Victoria in AZ
dh Mike 24 yrs; ds Kyle 18; dd Katie 12; and one funny pug
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Donna
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| Posted: July 06 2006 at 4:33am | IP Logged
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Praying, Karen.
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Donna
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Moments Like These
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esperanza
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Praying now for this family.
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In His Peace,
Tammy Gonzalez in VA
dh-Johnny
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and Jacinta-06
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Dawn
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Praying, Karen.
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Dawn, mum to 3 boys 
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Karen T
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| Posted: July 07 2006 at 4:55pm | IP Logged
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UPDATE!
I believe your prayers have really helped! Yesterday Joe had a really really bad day, and they were discussing wills, etc. Today, he showed substantial improvement to the point that the doctor said the machine is doing what they want and they think he will be able to come home on it, and maybe live another year or so! Truly must be a miracle! the only fly in the ointment right now is that the doctor says he has to stay in the hospital until he learns to use the machine and it might be months! I hope that's not the case, but things are still far better than they were a few days ago. Thank you everyone.
karen
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ladybugs
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We'll be leaving soon for Mass.
Prayers for Joe and Nancy!
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Love and God Bless,
Maria P
My etsy store - all proceeds go to help my fencing daughters!
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JennGM
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| Posted: July 10 2006 at 11:20am | IP Logged
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Karen, Praying for your friend. Glad the news is more positive...
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Jennifer G. Miller
Wife to  & ds1  '03 & ds2  '07
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kristina
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| Posted: July 10 2006 at 12:47pm | IP Logged
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Karen,
Thank you for the update. Joe and his family are in our prayers.
Blessings,
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kristina
yesterthoughts
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Donna Marie
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We are praying too!...thank you for updating us!
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God love you!
Donna Marie from NJ
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Finding Elegant Simplicity
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Karen T
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| Posted: July 23 2006 at 10:10pm | IP Logged
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I wanted to give another update to my request. After the turnaround, Joe continued to improve so much they let him go home last week. I saw him at home when I took them dinner and he looks very good, considering all he's been through. he's now using the by-pap machine at home as needed, and has to have continual oxygen (trailing lines around the house behind his wheelchair) but considering how dire things were just a few weeks ago, everyone is thrilled.
Thank you so much for your prayers and please mention them again when you think of it, b/c this crisis will certainly come around again. But the doctor has said he might have another year or year and a half.
Thanks,
Karen T
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jdostalik
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This is good news, Karen. How grateful to God he and his family must be to have more time. We will continue to remember this family in our prayers..
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God Bless,
Jennifer in TX
wife to Bill, mom to six here on earth and eight in heaven.
Let the Little Ones Come
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4Real Forums : We Pray to the Lord
Topic: for my friend's husband
