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4 lads mom Forum All-Star
Joined: Sept 26 2006
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Posted: Feb 04 2010 at 7:54am | IP Logged
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Hi Everyone,
In the last week, all but three of us have gotten sick. Lily, one of her big brothers, and I are healthy. Everyone else is pretty sick. We are in our big countdown to Lily’s surgery, her jaw distraction, on March 9th. If Lily is sick at all in the coming weeks to the surgery, they’ll cancel and reschedule at a later date....she has to be healthy for six weeks straight.
God’s timing is perfect....but I have to admit, it is an emotional roller-coaster as we prepare to go through a very big, invasive surgery. My rally cry is “Stay in the moment, that is where the Grace is!”......but my mama’s heart has moments of panic....I just want this trach out so, so bad...and that can’t happen until we get her jaw lengthened.
My prayer is that Lily stays healthy, (and my other guys get healthy, their asthma is acting up) and we can get jaw surgery as scheduled. I pray for the Grace, as well, if God has other plans.
Thanks ladies, you all are always in my intentions.
Update-2/8/10--I thought we were almost out of the woods.....but Lily woke up with a runny nose, ( a new thing for her, until her palate was closed a few months ago, it didn’t come out her nose, but in her mouth, so the positive side is......I know her palate repair is working!!!)
She was up several times, gagging and coughing....needing a lot of suctioning...so....I’ll call her surgeon later to see what is next, like, rescheduling her a few more weeks into March. In the end, it isn’t a big deal.....(if I keep telling myself that, I”ll believe it eventually, right? )
My 11 yo ds’s asthma is still misbehaving.....wheezing quite a bit and requiring lots of meds and treatments.....will be calling his doc as well.
Thanks for your prayers, dear Friends....they sustain us.
__________________ Mom of four brave lads and one sweet lassie
Scenes From This and That
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Mary K Forum All-Star
Joined: May 14 2005
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Posted: Feb 04 2010 at 8:01am | IP Logged
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Praying for your family, especially Lily.
God bless,
Mary-NY
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Mackfam Board Moderator
Non Nobis
Joined: April 24 2006 Location: Alabama
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Posted: Feb 04 2010 at 8:19am | IP Logged
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Oh no!!!! Is it too late to quarantine? Probably so. This would have me rattled, too, but I'm trusting that God knows exactly what He's doing with the timing of all of this, as well as the impact this would have on Lily's surgery. I remember waiting in anguish with you over the last surgery, postponed again and again, for the surgery to be completed on a day when the staff was just right for Lily! Hang in there! I'll re-focus my prayers for little Lily. May God's will be done, and may He generously supply you with the grace to meet His will with joy, cheer, and peace!
I'm praying for all of you, and putting in a big plug for NO SICKNESS for Lily so her surgery plan can move forward!
__________________ Jen Mackintosh
Wife to Rob, mom to dd 19, ds 16, ds 11, dd 8, and dd 3
Wildflowers and Marbles
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Paula in MN Forum All-Star
Joined: Nov 25 2006 Location: Minnesota
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Posted: Feb 04 2010 at 8:22am | IP Logged
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Sending many and prayers!!
__________________ Paula
A Catholic Harvest
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hylabrook1 Forum Moderator
Joined: July 09 2006
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Posted: Feb 04 2010 at 8:24am | IP Logged
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Praying for you all.
Peace,
Nancy
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joann10 Forum All-Star
Joined: Feb 10 2007
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Posted: Feb 04 2010 at 8:27am | IP Logged
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sending many, many prayers....
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amyable Forum All-Star
Joined: March 07 2005
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Posted: Feb 04 2010 at 8:29am | IP Logged
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Praying for all of you!
__________________ Amy
mom of 5, ages 6-16, and happy wife of
The Highly Sensitive Homeschooler
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guitarnan Forum Moderator
Joined: Feb 07 2005 Location: Maryland
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Posted: Feb 04 2010 at 8:32am | IP Logged
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I'm praying, too!
__________________ Nancy in MD. Mom of ds (24) & dd (18); 31-year Navy wife, move coordinator and keeper of home fires. Writer and dance mom.
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Ruth Forum All-Star
Joined: Nov 04 2006 Location: Virginia
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Posted: Feb 04 2010 at 8:34am | IP Logged
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Many prayers for your family, dear friend!
__________________ Ruth
mom to 7 miracles
My family blog
Loreto Rosaries
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stefoodie Forum Moderator
Joined: Feb 17 2005 Location: Ohio
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Posted: Feb 04 2010 at 9:17am | IP Logged
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still praying for you!
__________________ stef
mom to five
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Carole N. Forum All-Star
Joined: Oct 28 2006 Location: Wales
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Posted: Feb 04 2010 at 9:18am | IP Logged
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Prayers!
__________________ Carole ... in Wales
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DominaCaeli Forum All-Star
Joined: April 24 2007
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Posted: Feb 04 2010 at 10:15am | IP Logged
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Praying for all of you--especially Lily!
__________________ Blessings,
Celeste
Joyous Lessons
Mommy to six: three boys (8, 4, newborn) and four girls (7, 5, 2, and 1)
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teachingmyown Forum All-Star
Joined: Feb 20 2005 Location: Virginia
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Posted: Feb 04 2010 at 10:38am | IP Logged
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Stepping up our Lily prayers!
__________________ In Christ,
Molly
wife to Court & mom to ds '91, dd '96, ds '97, dds '99, '01, '03, '06, and dss '07 and 01/20/11
Remembering Today
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Maddie Forum All-Star
Joined: Dec 27 2005 Location: N/A
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Posted: Feb 04 2010 at 11:14am | IP Logged
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continuing prayers...
__________________ ~Maddie~
Wife to my dh and Momma of 9 dear ones
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SusanJ Forum All-Star
Joined: May 25 2007 Location: New Jersey
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Posted: Feb 04 2010 at 11:40am | IP Logged
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Prayers for Lily's health!
__________________ Mom to Joseph-8, Margaret-6, William-4, Gregory-2, and new little one due 11/1
Life Together
[URL=http://thejohnstonkids.blogspot.com]The Kids' Blog[/UR
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Nina Murphy Forum All-Star
Joined: May 18 2006 Location: California
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Posted: Feb 04 2010 at 11:48am | IP Logged
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Praying, sweetie. Hang in there.
__________________ God bless,
~~Nina
mother of 9 on earth,
and 2 yet-to-be-met
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Angie Mc Board Moderator
Joined: Jan 31 2005 Location: Arizona
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Posted: Feb 04 2010 at 12:07pm | IP Logged
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Nina Murphy wrote:
Praying, sweetie. Hang in there. |
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Riding the roller coaster with you, dear. And praying!
Love,
__________________ Angie Mc
Maimeo to Henry! Dave's wife, mom to Mrs. Devin+Michael Pope, Aiden 20,Ian 17,John Paul 11,Catherine (heaven 6/07)
About Me
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Chari Forum Moderator
Joined: Jan 28 2005 Location: California
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Posted: Feb 04 2010 at 12:32pm | IP Logged
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Praying for all of you, my friend!!
__________________ Chari...Take Up & Read
Dh Marty 27yrs...3 lovely maidens: Anne 24, Sarah 20 & Maddelyn 17 and 3 chivalrous sons: Matthew 22, Garrett 16 & Malachy 11
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wifemommy Forum All-Star
Joined: July 10 2006
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Posted: Feb 04 2010 at 4:07pm | IP Logged
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Praying and Annie
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MaryM Board Moderator
Joined: Feb 11 2005 Location: Colorado
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Posted: Feb 04 2010 at 4:34pm | IP Logged
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Offering prayers.
__________________ Mary M. in Denver
Our Domestic Church
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