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4 lads mom Forum All-Star
Joined: Sept 26 2006
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Posted: Oct 19 2010 at 6:05pm | IP Logged
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Hi Friends,
We have a big day tomorrow.....they are using a laser to remove scar tissue around Lily’s trach stoma site, which is probably what has been causing her not to tolerate her trach being capped. So, once we get the scar tissue out, she should sail through tolerating her trach being capped, forcing her to breath without the help of her trach cannula. Once she can tolerate capping during waking hours, for three weeks....she will be put in ICU, they’ll take her trach out, and we might just go home WITHOUT a TRACH a few days later.
Can I even dare to hope Lily might have her trach out by Christmas??
One day at a time.....God’s Will be done.....and thanks for your prayers! I’ll update tomorrow afternoon, her surgery is probably about 1 1/2 hours, and she’ll go home afterwards....if she behaves.
Also, we started speech therapy again, and today’s first appt. went so well. She tried to say “humming bird”. Oh....it was so, so cute!!! Lily is now wearing something called a “passey muir valve” that helps her talk....and boy, is she talking!!! My little vowel talker is beginning to sneak a few consonants in now. I just love that girl.
Thanks again!!!
__________________ Mom of four brave lads and one sweet lassie
Scenes From This and That
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joann10 Forum All-Star
Joined: Feb 10 2007
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Posted: Oct 19 2010 at 6:08pm | IP Logged
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Many prayers for Lilly, tomorrow, and for the next several weeks.
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guitarnan Forum Moderator
Joined: Feb 07 2005 Location: Maryland
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Posted: Oct 19 2010 at 6:32pm | IP Logged
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Praying, and rejoicing in your joy over Lily's continued improvement.
__________________ Nancy in MD. Mom of ds (24) & dd (18); 31-year Navy wife, move coordinator and keeper of home fires. Writer and dance mom.
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KauaiCatholic Forum All-Star
Joined: April 25 2009 Location: Hawaii
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Posted: Oct 19 2010 at 6:56pm | IP Logged
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praying for Lily here too
__________________ Viviane
Grateful mama of Jonah Augustine ('01), Sophia Marie ('05) and Luke Dominic ('10)
We can do no great things; only small things with great love. -- Blessed Teresa of Calcutta
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Pilgrim Forum All-Star
Joined: Feb 28 2007 Location: Wisconsin
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Posted: Oct 19 2010 at 7:30pm | IP Logged
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How wonderful! Love to hear of her progress, I love how you describe her talking. Praying.
__________________ Wife 2 my bf, g14,b8,g&b6,g4,g3,g1 1/2,4 ^i^
St. Clare Heirloom Seeds coupon 4Real 20% off
St. Clare Audio
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SeaStar Forum Moderator
Joined: Sept 16 2006
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Posted: Oct 19 2010 at 8:00pm | IP Logged
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Always glad to pray for Liliy. She is such a sweetheart!
__________________ Melinda, mom to ds ('02) and dd ('04)
SQUILT Music Appreciation
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Booksnbabes Forum All-Star
Joined: July 20 2008 Location: N/A
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Posted: Oct 19 2010 at 9:55pm | IP Logged
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Praying here!!! Oh, to be trach free!!! That would be a glorious Christmas gift indeed!!!
__________________ Wife to wonderful DH, mom to SIX beautiful gifts from God!
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mariB Forum All-Star
Joined: Dec 20 2006 Location: Vermont
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Posted: Oct 20 2010 at 6:37am | IP Logged
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Praying for your Lily...whenever I pray for our Lily, which is often..I will be praying for your precious Lily.
__________________ marib-Mother to 22ds,21ds,18ds,15dd,11dd and wife to an amazing man for 23 years
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Mackfam Board Moderator
Non Nobis
Joined: April 24 2006 Location: Alabama
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Posted: Oct 20 2010 at 7:25am | IP Logged
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Oh my! Prayers for today and little Lil!!!
__________________ Jen Mackintosh
Wife to Rob, mom to dd 19, ds 16, ds 11, dd 8, and dd 3
Wildflowers and Marbles
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JennGM Forum Moderator
Joined: Feb 07 2005 Location: Virginia
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Posted: Oct 20 2010 at 8:06am | IP Logged
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Praying for you two today!
__________________ Jennifer G. Miller
Wife to & ds1 '03 & ds2 '07
Family in Feast and Feria
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Carole N. Forum All-Star
Joined: Oct 28 2006 Location: Wales
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Posted: Oct 20 2010 at 9:00am | IP Logged
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Offering prayers now!
__________________ Carole ... in Wales
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KC in TX Forum All-Star
Joined: Aug 05 2005 Location: Texas
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Posted: Oct 20 2010 at 9:04am | IP Logged
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Praying.
__________________ KC,
wife to Ben (10/94),
Mama to LB ('98)
Michaela ('01)
Emma ('03)
Jordan ('05)
And, my 2 angels, Rose ('08) and Mark ('09)
The Cabbage Patch
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4 lads mom Forum All-Star
Joined: Sept 26 2006
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Posted: Oct 20 2010 at 9:37am | IP Logged
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So, Lily is out of surgery, did great, no scar tissue!!! The doctor said to push the capping, her airway is great, and hopefully she will be in soon to get her trach out.
Thanks, Friends!!!
__________________ Mom of four brave lads and one sweet lassie
Scenes From This and That
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hylabrook1 Forum Moderator
Joined: July 09 2006
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Posted: Oct 20 2010 at 10:24am | IP Logged
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Glad to hear the surgery went so well. Praying for a quick recovery and success with the capping. Lily is such a brave little girl!
Peace,
Nancy
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Nique Forum All-Star
Joined: March 07 2008 Location: Canada
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Posted: Oct 20 2010 at 11:05am | IP Logged
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Praise God! Offering up prayers of thanksgiving, and will continue praying
__________________ I had always thought that once you grew up you could do anything you wanted - stay up all night or eat ice cream straight out of the container. ~Bill Bryson
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stefoodie Forum Moderator
Joined: Feb 17 2005 Location: Ohio
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Posted: Oct 20 2010 at 12:10pm | IP Logged
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Seeing this late (again) but praying!!
__________________ stef
mom to five
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Ruth Forum All-Star
Joined: Nov 04 2006 Location: Virginia
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Posted: Oct 20 2010 at 3:07pm | IP Logged
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I'm keeping Lily and you in my prayers.
__________________ Ruth
mom to 7 miracles
My family blog
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Chris V Forum All-Star
Joined: Dec 03 2009 Location: Washington
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Posted: Oct 20 2010 at 11:04pm | IP Logged
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Praising God that all went well today for sweet Lily! What a treasure she is, continued prayers for you all
__________________ Chris
Happy Wife with my Happy Life
Mama to My Five Girls ('04~'07~'09~'11~'11)
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