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Angi Forum All-Star
Joined: March 23 2007
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Posted: Dec 21 2009 at 11:58am | IP Logged
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We saw the GI last week for Ana again. Reminder: Ana has suspected Eosiniphilic Gasteroenteris (aka EGE). She is allergic to many foods and has GI reactions to others. Because of this, she has a limited diet, but she also has EO28 Splash formula to drink.
Sadly, in the last 2 months she gained 1.5 pounds (yay) then lost most of it. Her GI increased her formula to 16 oz per day in addition to regular meals. She is not drinking the formula very well and not eating . If she continues to lose weight, they want to put an NG tube in her nose.
Please pray that she EATS! That is all I want right now, to avoid the tube.
Thanks
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joann10 Forum All-Star
Joined: Feb 10 2007
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Posted: Dec 21 2009 at 12:01pm | IP Logged
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sending many prayers....
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hylabrook1 Forum Moderator
Joined: July 09 2006
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Posted: Dec 21 2009 at 12:34pm | IP Logged
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Praying, Angi.
Peace,
Nancy
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my6angels Forum Pro
Joined: July 20 2009 Location: Illinois
Online Status: Offline Posts: 154
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Posted: Dec 21 2009 at 12:36pm | IP Logged
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I am praying very hard for Ana to eat and gain weight. My son had an NG tube for quite a while - no fun at all!!
__________________ God Bless!
Gina
Wife to Mark (1997)
Mama to Cecilia 10, Savanna 8, Leo 6, Neve 4, Fintan 2 and Aurelia 1 and baby due 9/2010
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organiclilac Forum All-Star
Joined: March 30 2006 Location: Illinois
Online Status: Offline Posts: 640
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Posted: Dec 21 2009 at 1:43pm | IP Logged
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We're praying here, Angi.
__________________ Tracy, wife to Shawn, mama to Samuel (4/01) and Joseph (11/11), and Thomas (2/15)
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teachingmyown Forum All-Star
Joined: Feb 20 2005 Location: Virginia
Online Status: Offline Posts: 5128
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Posted: Dec 21 2009 at 1:56pm | IP Logged
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praying!
__________________ In Christ,
Molly
wife to Court & mom to ds '91, dd '96, ds '97, dds '99, '01, '03, '06, and dss '07 and 01/20/11
Remembering Today
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guitarnan Forum Moderator
Joined: Feb 07 2005 Location: Maryland
Online Status: Offline Posts: 10883
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Posted: Dec 21 2009 at 2:02pm | IP Logged
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Praying for Ana and you, Angi.
__________________ Nancy in MD. Mom of ds (24) & dd (18); 31-year Navy wife, move coordinator and keeper of home fires. Writer and dance mom.
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Paula in MN Forum All-Star
Joined: Nov 25 2006 Location: Minnesota
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Posted: Dec 21 2009 at 2:20pm | IP Logged
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Praying hard for you and Ana.
__________________ Paula
A Catholic Harvest
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Mackfam Board Moderator
Non Nobis
Joined: April 24 2006 Location: Alabama
Online Status: Offline Posts: 14656
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Posted: Dec 21 2009 at 4:01pm | IP Logged
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I'm praying, Angi! How difficult this must be!
__________________ Jen Mackintosh
Wife to Rob, mom to dd 19, ds 16, ds 11, dd 8, and dd 3
Wildflowers and Marbles
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Anne Forum Pro
Joined: May 21 2007 Location: Tennessee
Online Status: Offline Posts: 368
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Posted: Dec 21 2009 at 10:45pm | IP Logged
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Sending prayers for your dear Ana.
__________________ Anne in TN
WIFE to Brett (91)
MOM to Rebecca(97), Catherine (99), Grace (99), Stephen (00) & 2 Angels in Heaven.
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aussieannie Forum All-Star
Joined: May 21 2006 Location: Australia
Online Status: Offline Posts: 7251
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Posted: Dec 22 2009 at 5:31am | IP Logged
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Praying for dear Ana!
__________________ Under Her Starry Mantle
Spiritual Motherhood for Priests
Blessed with 3 boys & 3 girls!
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stefoodie Forum Moderator
Joined: Feb 17 2005 Location: Ohio
Online Status: Offline Posts: 8457
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Posted: Dec 22 2009 at 8:43am | IP Logged
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Praying for her and you, Angi!
__________________ stef
mom to five
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stacykay Forum All-Star
Joined: April 08 2006 Location: Michigan
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Posted: Dec 22 2009 at 9:21am | IP Logged
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My prayers are coming for Ana!!!
God Bless,
Stacy in MI
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drmommy Forum Pro
Joined: Dec 14 2009 Location: California
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Posted: Dec 22 2009 at 10:56am | IP Logged
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I remember when my little Mary couldn't suck or eat (she had no sucking or gagging reflex), and had to be tube fed. It was very stressful, and I remember her doctor saying that eating problems are the most stressful for mothers. No kidding!
So, I will pray for you. It DOES become all consuming. After 2 years, she was finally able to suck a little. You will wonder where your strength comes from, but it will come from our prayers.
You will be prayed for in a special way by me, that's for sure. Hang in there. Keep going.
Bridget (Oh, Mary was diagnosed with Pachygyria...less folds in certain parts of the brain...her parts affected eating, speech, muscle tone, joints, and a list of other little things. however, the feeding issues were the most difficult...I feel for you. Will be praying!)
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donnalynn Forum All-Star
Joined: July 24 2006
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Posted: Dec 22 2009 at 2:22pm | IP Logged
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Praying for this little one.
__________________ donnalynn
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LisaR Forum All-Star
Joined: Feb 07 2005 Location: N/A
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Posted: Dec 22 2009 at 8:04pm | IP Logged
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oh Angi, I've been praying!
__________________ Lisa
dh Tim '92
Joseph 17
Paul 14
Thomas 11
Dominic 8
Maria Gianna 5
Isaac Vincent 9/21/10! and...
many little saints in heaven!
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4 lads mom Forum All-Star
Joined: Sept 26 2006
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Posted: Dec 23 2009 at 7:58am | IP Logged
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I can so relate...on so many levels....please take care of yourself during this time, it is so stressful!!
Many prayers!!!
__________________ Mom of four brave lads and one sweet lassie
Scenes From This and That
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Mary K Forum All-Star
Joined: May 14 2005
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Posted: Dec 23 2009 at 8:49am | IP Logged
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Praying for Ana.
Mary
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Angi Forum All-Star
Joined: March 23 2007
Online Status: Offline Posts: 521
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Posted: Dec 23 2009 at 8:50am | IP Logged
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Thanks everyone for the prayers - at this point I am almost ready to just get the tube. I spend so much time and energy trying to convince/coerce/bribe this child to eat that I feel like I get nothing else done.
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