Oh, Dearest Mother, Sweetest Virgin of Altagracia, our Patroness. You are our Advocate and to you we recommend our needs. You are our Teacher and like disciples we come to learn from the example of your holy life. You are our Mother, and like children, we come to offer you all of the love of our hearts. Receive, dearest Mother, our offerings and listen attentively to our supplications. Amen.



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Angi
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Posted: Dec 21 2009 at 11:58am | IP Logged Quote Angi

We saw the GI last week for Ana again. Reminder: Ana has suspected Eosiniphilic Gasteroenteris (aka EGE). She is allergic to many foods and has GI reactions to others. Because of this, she has a limited diet, but she also has EO28 Splash formula to drink.

Sadly, in the last 2 months she gained 1.5 pounds (yay) then lost most of it. Her GI increased her formula to 16 oz per day in addition to regular meals. She is not drinking the formula very well and not eating . If she continues to lose weight, they want to put an NG tube in her nose.   

Please pray that she EATS! That is all I want right now, to avoid the tube.

Thanks
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joann10
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Posted: Dec 21 2009 at 12:01pm | IP Logged Quote joann10

sending many prayers....
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hylabrook1
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Posted: Dec 21 2009 at 12:34pm | IP Logged Quote hylabrook1

Praying, Angi.

Peace,
Nancy
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my6angels
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Posted: Dec 21 2009 at 12:36pm | IP Logged Quote my6angels

I am praying very hard for Ana to eat and gain weight. My son had an NG tube for quite a while - no fun at all!!   

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organiclilac
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Posted: Dec 21 2009 at 1:43pm | IP Logged Quote organiclilac

We're praying here, Angi.

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teachingmyown
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Posted: Dec 21 2009 at 1:56pm | IP Logged Quote teachingmyown

praying!

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guitarnan
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Posted: Dec 21 2009 at 2:02pm | IP Logged Quote guitarnan

Praying for Ana and you, Angi.

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Paula in MN
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Posted: Dec 21 2009 at 2:20pm | IP Logged Quote Paula in MN

Praying hard for you and Ana.

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Mackfam
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Posted: Dec 21 2009 at 4:01pm | IP Logged Quote Mackfam

I'm praying, Angi! How difficult this must be!

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Anne
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Posted: Dec 21 2009 at 10:45pm | IP Logged Quote Anne

Sending prayers for your dear Ana.

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aussieannie
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Posted: Dec 22 2009 at 5:31am | IP Logged Quote aussieannie

Praying for dear Ana!

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stefoodie
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Posted: Dec 22 2009 at 8:43am | IP Logged Quote stefoodie

Praying for her and you, Angi!

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stacykay
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Posted: Dec 22 2009 at 9:21am | IP Logged Quote stacykay

My prayers are coming for Ana!!!


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drmommy
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Posted: Dec 22 2009 at 10:56am | IP Logged Quote drmommy

I remember when my little Mary couldn't suck or eat (she had no sucking or gagging reflex), and had to be tube fed. It was very stressful, and I remember her doctor saying that eating problems are the most stressful for mothers. No kidding!

So, I will pray for you. It DOES become all consuming. After 2 years, she was finally able to suck a little. You will wonder where your strength comes from, but it will come from our prayers.

You will be prayed for in a special way by me, that's for sure. Hang in there. Keep going.

Bridget (Oh, Mary was diagnosed with Pachygyria...less folds in certain parts of the brain...her parts affected eating, speech, muscle tone, joints, and a list of other little things. however, the feeding issues were the most difficult...I feel for you. Will be praying!)
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donnalynn
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Posted: Dec 22 2009 at 2:22pm | IP Logged Quote donnalynn

Praying for this little one.

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LisaR
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Posted: Dec 22 2009 at 8:04pm | IP Logged Quote LisaR

oh Angi, I've been praying!

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4 lads mom
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Posted: Dec 23 2009 at 7:58am | IP Logged Quote 4 lads mom

I can so relate...on so many levels....please take care of yourself during this time, it is so stressful!!

Many prayers!!!

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Mary K
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Posted: Dec 23 2009 at 8:49am | IP Logged Quote Mary K

Praying for Ana.
Mary
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Angi
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Posted: Dec 23 2009 at 8:50am | IP Logged Quote Angi

Thanks everyone for the prayers - at this point I am almost ready to just get the tube. I spend so much time and energy trying to convince/coerce/bribe this child to eat that I feel like I get nothing else done.   
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