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4 lads mom Forum All-Star
Joined: Sept 26 2006
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Posted: Aug 13 2008 at 4:29pm | IP Logged
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Hi Everyone,
Well, Lily is home, but they weren't able to do the cleft surgery. She had a few procedures before the actual cleft palate repair. They put ear tubes in, and did a bronchoscopy to check for scar tissue inside Lily's trachea. They think the bronchoscopy irritated her airway, and then when they were trying to change her trach out for an ET tube (the tube they intubate you with for surgery and put you on the vent), she went into a particularly bad bronchospasm, and her oxygen plummeted to the 50's. Oxygen came back up, they were trying to figure out if they should proceed, when she did it again. They decided to scrap the surgery, for fear if she continued, it could get very scary. So, the surgeon met us in the "consult room" and started with, "well, baby is okay...but we didn't do the repair". My heart about stopped, as he explained how her oxygen levels dropped a total of three times.
Once she was in the recovery room, and subsequently on the floor the admitted her to for observation, Lily did fine, and came home this afternoon. She sounds like someone who had been intubated, she is very raspy and needing aerosol treatments, but is doing okay.
I am running on little sleep, and lots of anxiety...please pray for complete recovery for Lily, my nerves, and that subsequent surgeries, (she faces several) aren't derailed as well....
I thank all of you for your prayers!!!!
__________________ Mom of four brave lads and one sweet lassie
Scenes From This and That
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aussieannie Forum All-Star
Joined: May 21 2006 Location: Australia
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Posted: Aug 13 2008 at 5:00pm | IP Logged
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Oh, I am so terribly sad that this has happened, poor, darling Lily! I'll be praying that through all these trials, all will be well in the end, that she will have all her ops safely and successfully! Carrying your intentions with me in a very special way!
__________________ Under Her Starry Mantle
Spiritual Motherhood for Priests
Blessed with 3 boys & 3 girls!
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teachingmyown Forum All-Star
Joined: Feb 20 2005 Location: Virginia
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Posted: Aug 13 2008 at 5:00pm | IP Logged
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I am so sorry. Our prayers continue fervently!
__________________ In Christ,
Molly
wife to Court & mom to ds '91, dd '96, ds '97, dds '99, '01, '03, '06, and dss '07 and 01/20/11
Remembering Today
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joann10 Forum All-Star
Joined: Feb 10 2007
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Posted: Aug 13 2008 at 5:04pm | IP Logged
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Thank goodness she's doing ok now. How scary!!
I will be keeping you both in my prayers....
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Angie Mc Board Moderator
Joined: Jan 31 2005 Location: Arizona
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Posted: Aug 13 2008 at 5:33pm | IP Logged
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Oh no! Praying that you all rest well and that all future procedures will be successful and uneventful .
Love,
__________________ Angie Mc
Maimeo to Henry! Dave's wife, mom to Mrs. Devin+Michael Pope, Aiden 20,Ian 17,John Paul 11,Catherine (heaven 6/07)
About Me
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Zeliemum Forum All-Star
Joined: July 04 2006 Location: Australia
Online Status: Offline Posts: 636
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Posted: Aug 13 2008 at 9:07pm | IP Logged
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Dear Diana,
We will continue to pray for no more delays for surgery for little Lily, with full recovery and peace and calm for you.
This brings back memories for me of my boy Jonathan who was intubated for nearly 4 months and all the associated problems that came with this procedure.
My heart goes out to you Diana and be assured of my family’s prayers and spiritual offerings for you all.
God Bless
Chemai
__________________ Mother to seven with five in heaven...Spiritualmotherhood for Priests
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Mackfam Board Moderator
Non Nobis
Joined: April 24 2006 Location: Alabama
Online Status: Offline Posts: 14656
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Posted: Aug 13 2008 at 9:38pm | IP Logged
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Praying for you and sweet little Lily! I'm so glad she's home for you to snuggle.
__________________ Jen Mackintosh
Wife to Rob, mom to dd 19, ds 16, ds 11, dd 8, and dd 3
Wildflowers and Marbles
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Cay Gibson Forum All-Star
Joined: July 16 2005 Location: Louisiana
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Posted: Aug 14 2008 at 8:09am | IP Logged
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Will keep the prayers coming.
Please try to rest as much as you are able.
__________________ Cay Gibson
"There are 49 states, then there is Louisiana." ~ Chef Emeril
wife to Mark '86
mom to 5
Cajun Cottage Under the Oaks
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missionfamily Forum All-Star
Joined: April 10 2007 Location: Louisiana
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Posted: Aug 14 2008 at 8:13am | IP Logged
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Prayers for sweet Lilly and all your family's needs.
__________________ Colleen
dh Greg
mom to Quinn,Gabriel, Brendan,Evan, Kolbe, and sweet St. Bryce
Footprints on the Fridge
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MarilynW Forum All-Star
Joined: June 28 2006 Location: N/A
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Posted: Aug 14 2008 at 8:31am | IP Logged
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We said special prayers for you last night - hope you had a good night's sleep. We will continue to pray and pray.
Hugs my friend
Marilyn
__________________ Marilyn
Blessed with 6 gifts from God
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Caroline Forum All-Star
Joined: March 04 2006 Location: California
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Posted: Aug 14 2008 at 9:26am | IP Logged
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Praying for dear Lily and for mom too.
__________________ Devoted Wife to and Mama to three beautiful boys and another little boy due in September, and two beautiful souls in heaven
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lilac hill Forum All-Star
Joined: Feb 15 2005
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Posted: Aug 14 2008 at 9:33am | IP Logged
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Thanks for the update.
Will continue praying.
V
__________________ Viv
Wife to Rick (7/83), Mom to dd#1(6/87), dd#2(1/90), and dd#3(6/94) in central PA.
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DominaCaeli Forum All-Star
Joined: April 24 2007
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Posted: Aug 14 2008 at 10:03am | IP Logged
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I'm sorry they weren't able to do the surgery--praying for Lily and you all.
__________________ Blessings,
Celeste
Joyous Lessons
Mommy to six: three boys (8, 4, newborn) and four girls (7, 5, 2, and 1)
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hylabrook1 Forum Moderator
Joined: July 09 2006
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Posted: Aug 14 2008 at 11:41am | IP Logged
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Continued prayers for Lily and for you and the rest of your family.
Peace,
Nancy
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trish Forum All-Star
Joined: April 11 2007 Location: Canada
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Posted: Aug 14 2008 at 1:20pm | IP Logged
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Praying here too!
__________________ ~ Trish ~
Wife to Les
Mom to 8 Wonderful Kids
+AMDG+
Saintly Soaps
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Lisa R Forum All-Star
Joined: May 29 2005 Location: Ohio
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Posted: Aug 14 2008 at 4:02pm | IP Logged
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I'm so sorry you're going through so much. My prayers continue for all of you.
__________________ God Bless!
Lisa, married to my best friend, Ray and loving my blessings Joshua (17)and Jacob(15), Hannah(7) and Rachel (5)!Holy Family Academy
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Ruth Forum All-Star
Joined: Nov 04 2006 Location: Virginia
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Posted: Aug 14 2008 at 6:38pm | IP Logged
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I'm so sorry to hear about Lily. I will continue to keep her in my prayers.
__________________ Ruth
mom to 7 miracles
My family blog
Loreto Rosaries
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jdostalik Forum All-Star
Joined: Feb 15 2005 Location: Texas
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Posted: Aug 15 2008 at 12:39pm | IP Logged
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I am glad Lily is okay but sorry that the surgery couldn't go forward. She remains in our prayers!
__________________ God Bless,
Jennifer in TX
wife to Bill, mom to six here on earth and eight in heaven.
Let the Little Ones Come
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cathhomeschool Board Moderator
Texas Bluebonnets
Joined: Jan 26 2005 Location: Texas
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Posted: Aug 15 2008 at 6:54pm | IP Logged
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I am so sorry. I've only been through two surgeries with a little one, and they were so stressful and yet so much less involved than what poor Lily is going through. She and you continue to have my prayers!
__________________ Janette (4 boys - 22, 21, 15, 14)
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