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lilac hill Forum All-Star
Joined: Feb 15 2005
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Posted: Jan 22 2007 at 8:39pm | IP Logged
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My niece continues to be plagued with a painful weakening condition that has not been diagnosed. It is not discitis, lupus, MS, or bone fractures. This is an added complication to her severe food and environmental allergies and asthma and the associated complications of long term immunosuppression.
It has been a long 2 months for my sister, niece, and her family and DN is not improving.
Today was DN's 10 yo MD appointment, followed by more blood tests. Depending on the results of the tests, DN will be seeing a neurologist or rheumatoligist.
Please pray for my DN, sister and her family.
If you have any prayers left, pray that I can somehow be of support to my sister. I would like to visit her but do not want to be more of a burden to her.
Is listening enough?
__________________ Viv
Wife to Rick (7/83), Mom to dd#1(6/87), dd#2(1/90), and dd#3(6/94) in central PA.
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Rebecca Forum All-Star
Joined: Dec 30 2005 Location: N/A
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Posted: Jan 22 2007 at 8:51pm | IP Logged
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I will pray for your niece, Viv. Can you ask your sister in what way you can be most helpful to her? I will pray for her and for you!
Love,
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teachingmyown Forum All-Star
Joined: Feb 20 2005 Location: Virginia
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Posted: Jan 22 2007 at 9:19pm | IP Logged
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How sad and frustrating! I will pray for you all.
__________________ In Christ,
Molly
wife to Court & mom to ds '91, dd '96, ds '97, dds '99, '01, '03, '06, and dss '07 and 01/20/11
Remembering Today
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ladybugs Forum All-Star
Joined: Feb 07 2005 Location: California
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Posted: Jan 22 2007 at 9:51pm | IP Logged
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Praying!
__________________ Love and God Bless,
Maria P
My etsy store - all proceeds go to help my fencing daughters!
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Chari Forum Moderator
Joined: Jan 28 2005 Location: California
Online Status: Offline Posts: 5228
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Posted: Jan 23 2007 at 12:19am | IP Logged
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So sad, Viv..........will be praying!
__________________ Chari...Take Up & Read
Dh Marty 27yrs...3 lovely maidens: Anne 24, Sarah 20 & Maddelyn 17 and 3 chivalrous sons: Matthew 22, Garrett 16 & Malachy 11
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Donna Forum All-Star
Joined: Feb 25 2005 Location: Pennsylvania
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Posted: Jan 23 2007 at 5:48am | IP Logged
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Praying here, Viv.
__________________ Donna
DH, Keven
Jason, Stevie, Marie, Jackson, Clara, and Aaron
Jacob, Sam, and Regina with God
Grandbabies Leigha and Elsie
Moments Like These
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Paula in MN Forum All-Star
Joined: Nov 25 2006 Location: Minnesota
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Posted: Jan 23 2007 at 6:19am | IP Logged
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Praying for all of you, Viv.
__________________ Paula
A Catholic Harvest
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Taffy Forum All-Star
Joined: April 05 2005 Location: Canada
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Posted: Jan 23 2007 at 6:35am | IP Logged
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Praying for your niece!
__________________ Susan
Mom to 5 on earth and 1 in heaven
Susan's Soliloquy
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Ruth Forum All-Star
Joined: Nov 04 2006 Location: Virginia
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Posted: Jan 23 2007 at 6:49am | IP Logged
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I will be praying for your niece and for you.
God bless,
__________________ Ruth
mom to 7 miracles
My family blog
Loreto Rosaries
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Jane Ramsey Forum All-Star
Joined: Jan 05 2007 Location: Florida
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Posted: Jan 23 2007 at 7:01am | IP Logged
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Joining you in prayer.
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1floridamom Forum Pro
Joined: June 30 2006 Location: Florida
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Posted: Jan 23 2007 at 8:55am | IP Logged
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Prayers for healing of your niece and prayers of strength for her parents and you.
__________________ Monica in FL
dh Steve, Sean (14), Ethan (13), Emily (10), Kylie (6), Ashley (5) and Lindsay (2)!
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shartlesville Forum All-Star
Joined: June 21 2006 Location: New Mexico
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Posted: Jan 23 2007 at 10:59am | IP Logged
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Praying here!
Blessings,
Krisann
__________________ Krisann
DH Cris;
DC John, Elizabeth, Lilyann ^i^, Emily, Kate, Julia, Sam, & Jack;
DGC Kira, Auston, Travis, & Sarah.
My Blog: Isla del Esperanza
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Angela F Forum All-Star
Joined: March 08 2005 Location: Iowa
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Posted: Jan 23 2007 at 4:31pm | IP Logged
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Prayers for healing and strength for them....
God bless,
Angela
__________________ Mom to 7 blessings - welcome to Hanna Clare 1/19/10
"‘Great’ holiness consists in carrying out the ‘little’ duties of each moment."
St. Josemaria Escriva
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Diane Forum Pro
Joined: Feb 01 2006 Location: Ohio
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Posted: Jan 23 2007 at 4:34pm | IP Logged
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Praying for all of your intentions, Viv. May she experience the healing touch of our Lord.
__________________ Peace,
Diane
Mom to five fair lasses and one bonny prince
The Journey of a Mother's Heart
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lilac hill Forum All-Star
Joined: Feb 15 2005
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Posted: Jan 23 2007 at 4:48pm | IP Logged
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Your prayers are helping me, my sister said she would like me to come out to Indy if my niece is hospitalized.
Still waiting for results.
Thank you
__________________ Viv
Wife to Rick (7/83), Mom to dd#1(6/87), dd#2(1/90), and dd#3(6/94) in central PA.
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lilac hill Forum All-Star
Joined: Feb 15 2005
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Posted: Jan 25 2007 at 1:17pm | IP Logged
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Here’s the latest on my niece-
This week has shown a continued increase in weakness, now it includes her arms and neck. This coupled with a visit to her pediatrician, she had another round of blood work drawn.
Today she was seen at the Riley Children’s hospital in Indy. The rheumatologist there said she does not have Lupus or arthritis. They now believe that it is a neurological issue. Due to years of pain, infections, and viruses—her nerves have gone haywire. They can no longer react appropriately. The doctor at the hospital said she has seen this in chronically ill children. The treatment is strength and flexibility training with the hope that her nerves will start to react properly. There is no time frame for her recovery and no way to prevent this from happening again. Hopefully my sister can find a pool that is well heated for Olivia’s water work. Insurance will no cover hospital based water therapy until private water treatment is tried. My sister has a new set of exercises to start now.
Thank you for all your prayers,
__________________ Viv
Wife to Rick (7/83), Mom to dd#1(6/87), dd#2(1/90), and dd#3(6/94) in central PA.
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JennGM Forum Moderator
Joined: Feb 07 2005 Location: Virginia
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Posted: Jan 25 2007 at 1:33pm | IP Logged
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Viv, praying that this is truly the answer and your niece will feel better. And praying also for your sister and the family. How stressful for all of you.
__________________ Jennifer G. Miller
Wife to & ds1 '03 & ds2 '07
Family in Feast and Feria
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1floridamom Forum Pro
Joined: June 30 2006 Location: Florida
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Posted: Jan 25 2007 at 1:51pm | IP Logged
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We'll continue to pray. It is so frustrating to be dealing with a chronic illness and then have financial stress heaped on top. God bless them.
__________________ Monica in FL
dh Steve, Sean (14), Ethan (13), Emily (10), Kylie (6), Ashley (5) and Lindsay (2)!
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Jane Ramsey Forum All-Star
Joined: Jan 05 2007 Location: Florida
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Posted: Jan 25 2007 at 1:54pm | IP Logged
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Praying.
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nissag Forum All-Star
Joined: Nov 23 2006 Location: Massachusetts
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Posted: Jan 25 2007 at 1:54pm | IP Logged
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Continuing to pray for Olivia! Chronic illness is a miserable thing.
__________________ Nissa
Deacon's wife, mother of eleven, farmer, teacher, creator, cook.
At Home With the Gadbois Family
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