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Kristen in TN Forum Pro
Joined: Oct 06 2006 Location: Tennessee
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Posted: Dec 14 2006 at 10:55pm | IP Logged
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Update, Octboer 27, 2008
We were just in New Jersey visiting Steven. We saw him everyday, excpet for one, between Sunday and Friday. There was a noticable decline. His Mom called around 7 am eastern time to tell me that Steven had just gone to Heaven.
Please contine to pray for his family, parents Madelyn & Glenn, and his sisters.
Thank you and God bless,
Kristen in TN
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Hello prayer warriors! On my blog today is a post about a boy, Steven, whose birthday is today.
http://krisvog.wordpress.com/2006/12/13/happy-birthday-steve n-tooth/
I called his mom to make sure he sees it and the news is not good there. I mention a cross that he has had to bear. It is a disease that I cannot remember the name of, but he has masses growing in him. He also has mold growing in his lungs. He has been in the hospital so much and been on so many different treatments since he was 13 and he is 25 today. He is the oldest survivor of this disease in history. He is on his last legs. This year was the first time he had to go on pain medication regularly. The last experimental treatment they could offer failed and his mother says he had his will made out and is preparing to die. He is still working 3 days a week in a doctor's office, but that is all he can handle. He is on 60mgs of codine 4 times a day and the next, and last thing they can do is put him on methadone. His Mom requests prayer for the whole family for acceptance. I have known this boy since he was 3 or 4 and the whole family is very special to me. Those children were more like neices and a nephew to me than my own were. Thank you all so much.
God bless,
Kristen in TN
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Paula in MN Forum All-Star
Joined: Nov 25 2006 Location: Minnesota
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Posted: Dec 15 2006 at 6:14am | IP Logged
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Praying for Steven in MN.
__________________ Paula
A Catholic Harvest
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hylabrook1 Forum Moderator
Joined: July 09 2006
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Posted: Dec 15 2006 at 7:45am | IP Logged
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Prayers for Steven and his family.
Peace,
Nancy
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stefoodie Forum Moderator
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Posted: Dec 15 2006 at 8:20am | IP Logged
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Praying for Steven and family.
__________________ stef
mom to five
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Carole N. Forum All-Star
Joined: Oct 28 2006 Location: Wales
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Posted: Dec 15 2006 at 8:28am | IP Logged
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Praying for Stephen and his familly.
__________________ Carole ... in Wales
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momwise Forum All-Star
Joined: March 28 2005 Location: Colorado
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Posted: Dec 15 2006 at 8:34am | IP Logged
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We'll be praying here Kristen.
__________________ Gwen...wife for 30 years, mom of 7, grandma of 3.....
"If you want equal justice for all and true freedom and lasting peace, then America, defend life." JPII
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shartlesville Forum All-Star
Joined: June 21 2006 Location: New Mexico
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Posted: Dec 16 2006 at 1:45am | IP Logged
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Prayers from NM!
Blessings,
Krisann
__________________ Krisann
DH Cris;
DC John, Elizabeth, Lilyann ^i^, Emily, Kate, Julia, Sam, & Jack;
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My Blog: Isla del Esperanza
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ALmom Forum All-Star
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Praying for Steven from AL.
Janet
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Leonie Forum All-Star
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Posted: Dec 17 2006 at 5:11am | IP Logged
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I am praying.
__________________ Leonie in Sydney
Living Without School
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Kristen in TN Forum Pro
Joined: Oct 06 2006 Location: Tennessee
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Posted: May 05 2007 at 2:25pm | IP Logged
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I wanted to bring this to the top. In January they threw a birthday party for him and eveyone chipped in so he could go drive a Nascar. He did that. The last few times I talked to his mom he was getting worse. He was holding on to work (they are very good to him and understanding there.) I called last week and he answered the phone and I did not recognize his voice. It sounds pretty weak. His Mom told me that he has not been to work in 3 weeks and he spends about 18 hours a day sleeping. His body is shutting down. We are going there to see him next week. Once again, please keep Steven and his family in your prayers.
God bless,
Kristen in TN
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joann10 Forum All-Star
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Posted: May 05 2007 at 2:30pm | IP Logged
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Praying for Steven and his family and friends.
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trish Forum All-Star
Joined: April 11 2007 Location: Canada
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Posted: May 05 2007 at 2:40pm | IP Logged
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Praying for Steven and his family.
__________________ ~ Trish ~
Wife to Les
Mom to 8 Wonderful Kids
+AMDG+
Saintly Soaps
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nicole-amdg Forum Pro
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Posted: May 05 2007 at 2:48pm | IP Logged
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Praying for Steven and all his loved ones.
__________________ Nicole
Wife to
Mom to
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Chari Forum Moderator
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Posted: May 05 2007 at 4:19pm | IP Logged
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Kristin, I am so sorry. I really feel your sadness. I promise to pray for all of you! What a brave fella!
__________________ Chari...Take Up & Read
Dh Marty 27yrs...3 lovely maidens: Anne 24, Sarah 20 & Maddelyn 17 and 3 chivalrous sons: Matthew 22, Garrett 16 & Malachy 11
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ladybugs Forum All-Star
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Praying for this dear boy....and all who love him.
__________________ Love and God Bless,
Maria P
My etsy store - all proceeds go to help my fencing daughters!
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Paula in MN Forum All-Star
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Posted: May 05 2007 at 6:13pm | IP Logged
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Still praying here!
__________________ Paula
A Catholic Harvest
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Leonie Forum All-Star
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Prayers from here.
__________________ Leonie in Sydney
Living Without School
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cathhomeschool Board Moderator
Texas Bluebonnets
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Praying here as well.
__________________ Janette (4 boys - 22, 21, 15, 14)
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Kristen in TN Forum Pro
Joined: Oct 06 2006 Location: Tennessee
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Posted: June 29 2007 at 10:31pm | IP Logged
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Here is an update that Steven wrote today, so please keep praying. Thank you and God bless.
i just wanted to let everybody know what's going on with me. as some of you know my hgb has been really low. but as of know it is staying steady at 9.0 my hematologist said that this # is ok for me since i have a lot of other stuff going. i am still taking fe (iron) & folic acid for the low hgb & low rbc's. as of lately i have been getting really bad headaches. i did not think anything of them because i usually get a lot of headaches. but when it was not gone after the 3rd day i called my dr. in Philadelphia. she recommended i get an mri of the brain. so i had one yesterday 6/27/07. they called me right away which is never good. they found some small nodules in my brain & one on my shull bone itself. she recommended that i go on the posazcansal. which is a drug to fight fungal infections. so basically what was is my lungs some of it broke of & got carried by my bloodstream to my brain. that is why i am having really bad headaches & light is bothering so bad. as of right now the lesions are small. but if the medicine does not work they will continue to grow like the mass in my chest. i just wanted to let you all know what was going on with me. i just pray it works.
steven
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DominaCaeli Forum All-Star
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Posted: June 29 2007 at 11:46pm | IP Logged
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Praying for Steven here.
__________________ Blessings,
Celeste
Joyous Lessons
Mommy to six: three boys (8, 4, newborn) and four girls (7, 5, 2, and 1)
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