Oh, Dearest Mother, Sweetest Virgin of Altagracia, our Patroness. You are our Advocate and to you we recommend our needs. You are our Teacher and like disciples we come to learn from the example of your holy life. You are our Mother, and like children, we come to offer you all of the love of our hearts. Receive, dearest Mother, our offerings and listen attentively to our supplications. Amen.



Active Topics || Favorites || Member List || Search || About Us || Help || Register || Login
Our Lady of Good Remedy and Care
 4Real Forums : Our Lady of Good Remedy and Care
Subject Topic: Gluten Intolerance/Celiac Post ReplyPost New Topic
Author
Message << Prev Topic | Next Topic >>
jillian
Forum Pro
Forum Pro


Joined: June 06 2010
Online Status: Offline
Posts: 233
Posted: Jan 29 2011 at 12:43pm | IP Logged Quote jillian

Anyone here living with this or have someone in your family with it?

I am making an appointment due to suspected gluten intolerance hopefully for the beginning of Feb. What all does it entail?
Back to Top View jillian's Profile Search for other posts by jillian
 
JamieCarin
Forum Rookie
Forum Rookie
Avatar

Joined: Nov 14 2008
Location: New Jersey
Online Status: Offline
Posts: 83
Posted: Jan 29 2011 at 12:51pm | IP Logged Quote JamieCarin

Both of my kids have had bloodwork to test for celiac and my son has had scratch tests to test for wheat allergy.

The onyl true test for celiac is a biopsy. The bloodwork can be unreliable and there are a fair number of false negatives. My daughter's IgA came back extremely low (so she is considered IgA deficient) and so she may need to get an endoscopy and a biopsy sometime in the future (she is dealing with a whole host of GI issues so they haven't gotten that far yet)

So my guess is they will start with bloodwork and see what that shows if anything and the decide what to do from there. It is also worth being tested for wheat allergy which is DIFFERENT than celiac. It would involve the simple food allergy scratch test and/or RAST blood test for wheat.

__________________
Wife to Claudio for 9yrs, Mom to Ben (4), and Annabella (almost 3), and Beatrice (born 1/17/12)

Ad Silvam Ibimus
Back to Top View JamieCarin's Profile Search for other posts by JamieCarin Visit JamieCarin's Homepage
 
jillian
Forum Pro
Forum Pro


Joined: June 06 2010
Online Status: Offline
Posts: 233
Posted: Jan 29 2011 at 4:56pm | IP Logged Quote jillian

Thank you. I have several of the symptoms that make me suspect a gluten issue so I will be calling on Monday for an appointment.
Back to Top View jillian's Profile Search for other posts by jillian
 
Mary K
Forum All-Star
Forum All-Star


Joined: May 14 2005
Online Status: Offline
Posts: 945
Posted: Jan 29 2011 at 8:41pm | IP Logged Quote Mary K

A good friend has recently learned she has celiac. One thing her dr. told her is that people of Finnish decent (which she is) have a high likelihood of celiac.
God bless,
Mary-NY   
Back to Top View Mary K's Profile Search for other posts by Mary K
 
Becky Parker
Forum All-Star
Forum All-Star
Avatar

Joined: May 23 2005
Location: Michigan
Online Status: Offline
Posts: 2582
Posted: Jan 31 2011 at 7:33am | IP Logged Quote Becky Parker

I'm currently reading The Gluten Connection and find it very interesting. I have at least one, maybe 3 ds's that have gluten issues. One thing the author of this book says is that a biopsy will show Celiac, but not always gluten sensitivity.
We decided to first try eliminating gluten from this ds's diet and in just a few days his symptoms have decreased. That might be a good way to start.

__________________
Becky
Wife to Wes, Mom to 6 wonderful kids on Earth and 4 in Heaven!
Academy Of The Good Shepherd
Back to Top View Becky Parker's Profile Search for other posts by Becky Parker
 
jillian
Forum Pro
Forum Pro


Joined: June 06 2010
Online Status: Offline
Posts: 233
Posted: Jan 31 2011 at 10:24am | IP Logged Quote jillian

Thanks Becky. I have been trying to cut out gluten products or at least cut them down significantly
Back to Top View jillian's Profile Search for other posts by jillian
 
JodieLyn
Forum Moderator
Forum Moderator
Avatar

Joined: Sept 06 2006
Location: Oregon
Online Status: Offline
Posts: 12234
Posted: Jan 31 2011 at 12:52pm | IP Logged Quote JodieLyn

yeah and I've heard that the allergy tests while helpful.. won't show an intolerance/sensitivity if it's not a true allergy.. it could still be the same thing causing problems without being a true allergy apparently.

A friend recommends these sites pecanbread.com and breaking the vicious cycle

__________________
Jodie, wife to Dave
G-18, B-17, G-15, G-14, B-13, B-11, G-9, B-7, B-5, B-4

All men who have turned out worth anything have had the chief hand in their own education.
-Sir Walter Scott
Back to Top View JodieLyn's Profile Search for other posts by JodieLyn
 
hylabrook1
Forum Moderator
Forum Moderator


Joined: July 09 2006
Online Status: Offline
Posts: 5980
Posted: Jan 31 2011 at 12:54pm | IP Logged Quote hylabrook1

Wow, Becky! Glad to hear your son is doing well.
I tend to have relatively minor health issues that go away when I am GF and come back when I slack off on that. Actually, it's one of those things that, when the problems go away, I can't believe how much better/happier I feel - so even though I pass it off as not a big deal when I eat gluten, I don't think I"d notice the difference so much unless I really do feel pretty on it. Two or three times I had bloodwork that didn't look like I should be worked up for celiac, but once I had a biopsy (during a routine colonoscopy - sorry if tmi) that was unclear.The report said "possible early celiac" - whatever that means. My rast test for wheat allergy also doesn't look so good.
I think there is A LOT of wheat allergy/gluten sensitivity out there that goes unrecognized because people just feel a little *off* and not sick enough that they go to the doctor.
Just ordered a *like new* copy of The Gluten Connection from Amazon (great deal - hardback for 11 cents plus s&h - I can't afford not to learn more ).

Peace,
Nancy
Back to Top View hylabrook1's Profile Search for other posts by hylabrook1
 
Erin
Forum Moderator
Forum Moderator


Joined: Feb 23 2005
Location: Australia
Online Status: Offline
Posts: 5814
Posted: Jan 31 2011 at 1:44pm | IP Logged Quote Erin

Jillian

Were you able to get an appointment? We were recently discussing gluten intolerance with Becky, it is far more prevalent than acknowledged.

Becky Parker wrote:
We decided to first try eliminating gluten from this ds's diet and in just a few days his symptoms have decreased.

This is fantastic news!


__________________
Erin
Faith Filled Days
Seven Little Australians
Back to Top View Erin's Profile Search for other posts by Erin Visit Erin's Homepage
 
jillian
Forum Pro
Forum Pro


Joined: June 06 2010
Online Status: Offline
Posts: 233
Posted: Jan 31 2011 at 4:24pm | IP Logged Quote jillian

I haven't called yet today (it's been hectic here). I will be calling when dh goes back to work.
Back to Top View jillian's Profile Search for other posts by jillian
 
Becky Parker
Forum All-Star
Forum All-Star
Avatar

Joined: May 23 2005
Location: Michigan
Online Status: Offline
Posts: 2582
Posted: Feb 01 2011 at 6:01am | IP Logged Quote Becky Parker

I just wanted to say I was surprised at how quickly my ds's problems began to clear up with the removal of gluten. That could be because he's only 3 and the damage isn't as serious as someone whose had problems for years and years. But really, in just 24 hours his appetite returned and in less than a week he's starting to gain weight.
I'm really thankful for the advice and encouragement I received at this thread. I guess I needed the little push to do what I needed to do. It's just hard with a little person because I had a hard time communicating to me when he wasn't feeling well.
Hope you get some answers Jillian!

__________________
Becky
Wife to Wes, Mom to 6 wonderful kids on Earth and 4 in Heaven!
Academy Of The Good Shepherd
Back to Top View Becky Parker's Profile Search for other posts by Becky Parker
 
jillian
Forum Pro
Forum Pro


Joined: June 06 2010
Online Status: Offline
Posts: 233
Posted: Feb 01 2011 at 9:17am | IP Logged Quote jillian

Thank you everyone!
Back to Top View jillian's Profile Search for other posts by jillian
 
Olivia
Forum Rookie
Forum Rookie


Joined: Oct 20 2009
Location: United Kingdom
Online Status: Offline
Posts: 68
Posted: Feb 04 2011 at 6:55pm | IP Logged Quote Olivia

I have found this book very useful found online or amazon. GAPS can help people with all sorts of digestive problems, autoimmune conditions and more. I learnt how the digestive system is so linked to other health problems. Short you tube videos can be found like this one or this one. This is Dr Natasha Campbell McBride's website and another. There is a lot about healing various mental or physical illnesses but it all starts with healing the gut. Her programme/diet is temporary and designed to heal the gut and therefore not needing to be on lifelong diet eg gluten free. There's lots on this topic in google.
Back to Top View Olivia's Profile Search for other posts by Olivia
 
Chris V
Forum All-Star
Forum All-Star
Avatar

Joined: Dec 03 2009
Location: Washington
Online Status: Offline
Posts: 1598
Posted: Feb 05 2011 at 8:12am | IP Logged Quote Chris V

hylabrook1 wrote:
I tend to have relatively minor health issues that go away when I am GF and come back when I slack off on that. Actually, it's one of those things that, when the problems go away, I can't believe how much better/happier I feel - so even though I pass it off as not a big deal when I eat gluten, I don't think I"d notice the difference so much unless I really do feel pretty


This is pretty much my experience as well. I've never had any formal testing procedures done, or bloodwork for that mattter. But it doesn't take any of that (for me) to know that I certainly have gluten sensitivities. I haven't any idea of whether or not I have a true allergy to it, and I know that I'm not intolerant, but sensitive? Yes. I am better off staying away from it altogether.

__________________
Chris
Happy Wife with my Happy Life
Mama to My Five Girls ('04~'07~'09~'11~'11)
Back to Top View Chris V's Profile Search for other posts by Chris V
 
jillian
Forum Pro
Forum Pro


Joined: June 06 2010
Online Status: Offline
Posts: 233
Posted: Feb 05 2011 at 9:50am | IP Logged Quote jillian

Chris and Nancy, that's similar to what is going on for me. I would like to get some answers about it though to just be able to say for certain ya know? It would finally put to rest that niggling feeling I have that something is wrong with me.
Back to Top View jillian's Profile Search for other posts by jillian
 

If you wish to post a reply to this topic you must first login
If you are not already registered you must first register

  [Add this topic to My Favorites] Post ReplyPost New Topic
Printable version Printable version

Forum Jump
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot delete your posts in this forum
You cannot edit your posts in this forum
You cannot create polls in this forum
You cannot vote in polls in this forum

Hosting and Support provided by theNetSmith.com