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LisaR Forum All-Star
Joined: Feb 07 2005 Location: N/A
Online Status: Offline Posts: 2226
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Posted: May 02 2008 at 6:11pm | IP Logged
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I have a pretty rare combination of genetic disorders, prompting the specialists who work with me from Texas (Univ. Hosp Galveston) to request that my parents/siblings/children be tested as well.
So far only my dad and one sibling has been tested.
My dad's bloodwork was "redrawn" three times, because he was off the charts high with certain levels.
basically I am off the charts high at levels in the 80's, his were all well over 200 and so they thought that it was a lab error.
He is in grave? medical need right now (who knew??) and they are not sure how he has coped this long.
He has to go through Mayo now and there is great push for my children to all be tested ASAP.
I know what it is like to have the ah-ha lightbulb go off as this disorder explains so much of (seemingly unconnected ) the "why" behind ongoing and past helath struggles.
Please pray that they will be able to help him at Mayo, and that we will have some conclusions and resolutions and a "health game plan" soon.
oh, and a little prayer of discernment about when/if to test all the kids?
I do not want them to be treated like guinea pigs, and yet, we need to know, kwim??
thanks,
__________________ Lisa
dh Tim '92
Joseph 17
Paul 14
Thomas 11
Dominic 8
Maria Gianna 5
Isaac Vincent 9/21/10! and...
many little saints in heaven!
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missionfamily Forum All-Star
Joined: April 10 2007 Location: Louisiana
Online Status: Offline Posts: 1859
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Posted: May 02 2008 at 6:44pm | IP Logged
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Prayers Lisa for this frightening and confusing situation.
__________________ Colleen
dh Greg
mom to Quinn,Gabriel, Brendan,Evan, Kolbe, and sweet St. Bryce
Footprints on the Fridge
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mellyrose Forum All-Star
Joined: May 12 2006
Online Status: Offline Posts: 939
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Posted: May 02 2008 at 6:46pm | IP Logged
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Prayers for you & your dad, Lisa! Also praying for your discernment regarding your children.
__________________ Melanie in AZ
Colin (11/00), Nate (05/02), Lydia (04/07)
My Little Patch of Sunshine
Pictures of our Life
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guitarnan Forum Moderator
Joined: Feb 07 2005 Location: Maryland
Online Status: Offline Posts: 10883
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Posted: May 02 2008 at 6:52pm | IP Logged
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Praying, Lisa.
__________________ Nancy in MD. Mom of ds (24) & dd (18); 31-year Navy wife, move coordinator and keeper of home fires. Writer and dance mom.
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momwats8 Forum All-Star
Joined: July 20 2006 Location: Florida
Online Status: Offline Posts: 1084
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Posted: May 02 2008 at 7:05pm | IP Logged
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Lisa- I will be praying for you all.
Love you - Me
__________________ Mary- Wife to Mike and Mother to Austin(92), Mikey(95), R.J.(97), Benedict(98), Kolbe(00), Ignatius(02), Christian(03), Margaret(05),&4 angels in heaven
http://www.momwats8.blogspot.com
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SeaStar Forum Moderator
Joined: Sept 16 2006
Online Status: Offline Posts: 9068
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Posted: May 02 2008 at 8:18pm | IP Logged
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Praying for you all right now- such a hard situation. Praying the Blessed Mother will be like a candle lighting your way.
__________________ Melinda, mom to ds ('02) and dd ('04)
SQUILT Music Appreciation
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joann10 Forum All-Star
Joined: Feb 10 2007
Online Status: Offline Posts: 3493
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Posted: May 02 2008 at 8:20pm | IP Logged
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Sending many prayers....
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chicken lady Forum All-Star
Joined: Feb 27 2005 Location: N/A
Online Status: Offline Posts: 2315
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Posted: May 02 2008 at 8:21pm | IP Logged
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Praying Lisa!
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SuzC Forum All-Star
Joined: Feb 20 2005
Online Status: Offline Posts: 531
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Posted: May 02 2008 at 9:41pm | IP Logged
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Praying, Lisa! How scary this must be for you all! I hope our prayers bring you some peace.
__________________ Suz in TX
dd~12, dd~9, ds~8, ds~6, ds~4, ds~1
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Nina Murphy Forum All-Star
Joined: May 18 2006 Location: California
Online Status: Offline Posts: 1546
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Posted: May 02 2008 at 10:39pm | IP Logged
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wow-----so so hard----praying!
__________________ God bless,
~~Nina
mother of 9 on earth,
and 2 yet-to-be-met
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happymama Forum Pro
Joined: Feb 05 2007 Location: N/A
Online Status: Offline Posts: 410
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Posted: May 03 2008 at 8:45am | IP Logged
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Praying, Lisa.
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Taffy Forum All-Star
Joined: April 05 2005 Location: Canada
Online Status: Offline Posts: 1567
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Posted: May 03 2008 at 9:06am | IP Logged
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Adding my prayers, Lisa!
__________________ Susan
Mom to 5 on earth and 1 in heaven
Susan's Soliloquy
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LLR4 Forum Pro
Joined: April 10 2008 Location: N/A
Online Status: Offline Posts: 163
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Posted: May 03 2008 at 9:39am | IP Logged
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We will br praying for you all!
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Ruth Forum All-Star
Joined: Nov 04 2006 Location: Virginia
Online Status: Offline Posts: 5007
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Posted: May 03 2008 at 12:56pm | IP Logged
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Praying.
__________________ Ruth
mom to 7 miracles
My family blog
Loreto Rosaries
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trish Forum All-Star
Joined: April 11 2007 Location: Canada
Online Status: Offline Posts: 1538
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Posted: May 03 2008 at 1:00pm | IP Logged
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Praying Lisa.
__________________ ~ Trish ~
Wife to Les
Mom to 8 Wonderful Kids
+AMDG+
Saintly Soaps
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