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4 lads mom Forum All-Star
Joined: Sept 26 2006
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Posted: May 01 2010 at 7:07am | IP Logged
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It is fast approaching.....May 4th, this coming Tuesday, Lily will have her jaw distraction. The link for jaw distraction has one of the best explanations and pictures I have seen! If you click on the arrows for “how distraction works”, it shows exactly what Lily will have done. We have been waiting to do this for two years....and I will be so relieved when we get it done! Lily will be in surgery for about 4 1/2 hours, probably an hour or more will be just getting the girl to sleep....she is not an easy anesthesia case.
The good news in all of this is the end result is likely getting Lily’s trach out, hopefully by her third birthday in August, or shortly after....that is our goal! I have talked to Lily about her surgery, shown her pictures....it is heartbreaking, she signs, “Lily cry, hurt" Poor girl...this is the worst, Friends, having to place my baby on that surgery table, and knowing it is all for the good, but she will suffer greatly getting to the end result.
Please pray for great pain control, a successful surgery, for Lily to leave all of the hardware on her face alone (that will be there for 6-9 weeks), safe travel for us, for NO allergic reactions for my highly sensitive food allergic kids coming along for the ride, and fortitude and good humor for all.....it is going to be a long haul.
I am so thankful for your prayers, I really am....I’ll have someone update post op Tuesday, her surgery is scheduled for 10am EST.
__________________ Mom of four brave lads and one sweet lassie
Scenes From This and That
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Paula in MN Forum All-Star
Joined: Nov 25 2006 Location: Minnesota
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Posted: May 01 2010 at 7:18am | IP Logged
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I'll be praying!!
__________________ Paula
A Catholic Harvest
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Maddie Forum All-Star
Joined: Dec 27 2005 Location: N/A
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Posted: May 01 2010 at 8:04am | IP Logged
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4 lads mom wrote:
it is heartbreaking, she signs, “Lily cry, hurt" Poor girl...this is the worst, Friends, having to place my baby on that surgery table, and knowing it is all for the good, but she will suffer greatly getting to the end result.
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Oh dear, dear 4 Lads Mom! This is heartbreaking to read. Sweet, sweet Lily. I am marking May 4th on my calendar and we will pray the entire day for Lily and your family, you will have all of our prayers that day, my friend. I can not imagine having to go through this. Stay close to Our Sorrowful Mother, she will comfort and sustain you.
__________________ ~Maddie~
Wife to my dh and Momma of 9 dear ones
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Angie Mc Board Moderator
Joined: Jan 31 2005 Location: Arizona
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Posted: May 01 2010 at 8:36am | IP Logged
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Just reading the topic title, my eyes filled up! Praying, praying, praying...offering May 4th up for your intentions, dear .
Love,
__________________ Angie Mc
Maimeo to Henry! Dave's wife, mom to Mrs. Devin+Michael Pope, Aiden 20,Ian 17,John Paul 11,Catherine (heaven 6/07)
About Me
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DominaCaeli Forum All-Star
Joined: April 24 2007
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Posted: May 01 2010 at 8:55am | IP Logged
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Praying for your dear Lily.
__________________ Blessings,
Celeste
Joyous Lessons
Mommy to six: three boys (8, 4, newborn) and four girls (7, 5, 2, and 1)
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Angel Forum All-Star
Joined: April 22 2006
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Posted: May 01 2010 at 9:10am | IP Logged
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We'll be keeping Lily in our prayers.
__________________ Angela
Mom to 9, 7 boys and 2 girls
Three Plus Two
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ALmom Forum All-Star
Joined: May 18 2005
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Posted: May 01 2010 at 12:27pm | IP Logged
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We'll be praying for Lily.
Janet
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guitarnan Forum Moderator
Joined: Feb 07 2005 Location: Maryland
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Posted: May 01 2010 at 1:06pm | IP Logged
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Definitely praying for all of these intentions.
__________________ Nancy in MD. Mom of ds (24) & dd (18); 31-year Navy wife, move coordinator and keeper of home fires. Writer and dance mom.
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amarytbc Forum Pro
Joined: July 06 2007
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Posted: May 01 2010 at 4:32pm | IP Logged
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Praying for the doctors and Lily.
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SeaStar Forum Moderator
Joined: Sept 16 2006
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Posted: May 01 2010 at 8:29pm | IP Logged
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Lily is so brave, as is her mother! I will pray all goes well. What a happy day it will be when this is over and done!
__________________ Melinda, mom to ds ('02) and dd ('04)
SQUILT Music Appreciation
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joann10 Forum All-Star
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Posted: May 01 2010 at 8:41pm | IP Logged
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praying mightily...
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organiclilac Forum All-Star
Joined: March 30 2006 Location: Illinois
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Posted: May 01 2010 at 9:50pm | IP Logged
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Praying for you all!
__________________ Tracy, wife to Shawn, mama to Samuel (4/01) and Joseph (11/11), and Thomas (2/15)
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MarilynW Forum All-Star
Joined: June 28 2006 Location: N/A
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Posted: May 03 2010 at 6:38am | IP Logged
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We are praying constantly here for precious little Lily. We are especially asking the intercession of Saint Therese the Little Flower - have been saying the Rose Novena:
O Little Thérèse of the Child Jesus, please pick for me a rose from the heavenly gardens and send it to me as a message of love.
O Little Flower of Jesus, ask God today to grant the favors I now place with confidence in your hands (for precious Lily and her family)
St. Thérèse, help me to always believe as you did, in God's great love for me, so that I might imitate your "Little Way" each day. Amen.
Praying to for everyone else and you especially. And for the surgeons, anesthesia people etc.
Please give the darling darling girl a hug from all of us here. Her 2 year old buddy here even knelt down and "said" a decade for her yesterday during Rosary (even if it was like the Children of Fatima before Our Lady appeared - just Our Father,Hail Mary, Holy Mary, Glory Be!!!)
I will be drinking lots of cups of tea and being nervous with you tomorrow.
Hugs
__________________ Marilyn
Blessed with 6 gifts from God
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stefoodie Forum Moderator
Joined: Feb 17 2005 Location: Ohio
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Posted: May 03 2010 at 7:00am | IP Logged
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we are praying!!!
__________________ stef
mom to five
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mariB Forum All-Star
Joined: Dec 20 2006 Location: Vermont
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Posted: May 03 2010 at 7:13am | IP Logged
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Praying for your Lily...lifting her up in prayer at mass on Tuesday...
__________________ marib-Mother to 22ds,21ds,18ds,15dd,11dd and wife to an amazing man for 23 years
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hylabrook1 Forum Moderator
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Posted: May 03 2010 at 8:23am | IP Logged
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Praying for Lily and for you, especially on Tuesday.
Peace,
Nancy
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Kathryn Forum All-Star
Joined: April 24 2009 Location: N/A
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Posted: May 03 2010 at 12:07pm | IP Logged
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Praying fervently as well for your Lily and you and all your family for a safe travel and safe surgery and that God's hands will guide and direct everyone who touches and cares for her from the time she leaves your arms to the time she returns. May everyone feel God's presence and comfort and peace in what she has to endure and may the pain meds work really, really well!
Peace,
__________________ Kathryn in TX
(dd 16, ds 15, dd 8, dd 5)
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Teachin'Mine2 Forum Pro
Joined: Jan 22 2010 Location: N/A
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Posted: May 03 2010 at 2:31pm | IP Logged
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Praying for Lily, for you and your family, for her surgical team, for a successful surgery, for her quick recovery and healing, and for her to be able to feel well and smile.
We'll include all these intentions in our rosary tonight, and I'll be praying throughout the day tomorrow. May the Blessed Mother wrap Lily, and your family, in her mantle.
__________________ mom of one 13yo dd
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aussieannie Forum All-Star
Joined: May 21 2006 Location: Australia
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Posted: May 03 2010 at 3:42pm | IP Logged
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Oh!!! Those words of Lily's!! The children and I will be praying from this point on, we will join with Marilyn offering a prayer to St Therese on each angelus hour.
__________________ Under Her Starry Mantle
Spiritual Motherhood for Priests
Blessed with 3 boys & 3 girls!
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SeaStar Forum Moderator
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Posted: May 03 2010 at 8:58pm | IP Logged
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Bumping this up... praying for Lily, her doctors, nurses, family..
asking the Guardian Angels to see her safely through this!
__________________ Melinda, mom to ds ('02) and dd ('04)
SQUILT Music Appreciation
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