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SeaStar Forum Moderator
Joined: Sept 16 2006
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Posted: Dec 18 2009 at 6:35am | IP Logged
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Offering up my day for your sweet Lily!
__________________ Melinda, mom to ds ('02) and dd ('04)
SQUILT Music Appreciation
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Maddie Forum All-Star
Joined: Dec 27 2005 Location: N/A
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Posted: Dec 18 2009 at 10:15am | IP Logged
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Little update on Lily:
She's out of surgery and in recovery but that's all 4 Lads Mom knows right now. She's waiting for a report from the surgeon.
Keeping up the prayers here!
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Mackfam Board Moderator
Non Nobis
Joined: April 24 2006 Location: Alabama
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Posted: Dec 18 2009 at 11:15am | IP Logged
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Oh, I'm so relieved to hear this update, Maddie...thinking of all of you, 4 lads mom, and continuing to pray for little Lily!
I know you'll update again when you hear something, Maddie...I'll be waiting!
__________________ Jen Mackintosh
Wife to Rob, mom to dd 19, ds 16, ds 11, dd 8, and dd 3
Wildflowers and Marbles
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Donna Marie Forum All-Star
Joined: Feb 07 2005 Location: New Jersey
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Posted: Dec 18 2009 at 11:30am | IP Logged
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Praying here! Thank you for the update!
__________________ God love you!
Donna Marie from NJ
hs momma to 9dc!!
Finding Elegant Simplicity
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MarilynW Forum All-Star
Joined: June 28 2006 Location: N/A
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Posted: Dec 18 2009 at 1:08pm | IP Logged
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I just heard from 4ladsmom - GOD IS SO GOOD - everything went perfectly - they are on their way home and Lily is doing wonderfully. She will update when they are home.
We are going to keep praying them through the next few weeks - for Lily's pain management and wound healing and that all germs will stay away from their family through the Christmas period.
Whew - such relief!!
__________________ Marilyn
Blessed with 6 gifts from God
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Angie Mc Board Moderator
Joined: Jan 31 2005 Location: Arizona
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Posted: Dec 18 2009 at 5:18pm | IP Logged
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My prayers continue! Thanks for the updates .
Love,
__________________ Angie Mc
Maimeo to Henry! Dave's wife, mom to Mrs. Devin+Michael Pope, Aiden 20,Ian 17,John Paul 11,Catherine (heaven 6/07)
About Me
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guitarnan Forum Moderator
Joined: Feb 07 2005 Location: Maryland
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Posted: Dec 18 2009 at 5:45pm | IP Logged
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Yay!!!!
The best possible Christmas present!
Thanks for letting us know.
__________________ Nancy in MD. Mom of ds (24) & dd (18); 31-year Navy wife, move coordinator and keeper of home fires. Writer and dance mom.
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ALmom Forum All-Star
Joined: May 18 2005
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Posted: Dec 18 2009 at 7:35pm | IP Logged
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Oh, so glad that everyone is on the way home. Will continue to pray for quick healing.
Janet
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cathhomeschool Board Moderator
Texas Bluebonnets
Joined: Jan 26 2005 Location: Texas
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Posted: Dec 18 2009 at 7:45pm | IP Logged
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Praise God! I will continue to pray for Lily and her recovery time.
__________________ Janette (4 boys - 22, 21, 15, 14)
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4 lads mom Forum All-Star
Joined: Sept 26 2006
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Posted: Dec 18 2009 at 10:05pm | IP Logged
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Hi Everyone,
We are home. Unbelievable day of miracles. It was as if God was saying, “See, I really wanted it done THIS way!!!” and of course, His way was amazing!! For the first time since she had her first crash and burn last year during surgery and quit breathing......she did not have ONE bronchospasm during surgery today!!!! The reason was, Lily had SIX anesthesiology staff on her case in the beginning....two CRNA’s and four MD’s.....and they all brainstormed and came up with the perfect way to get Lily to sleep that involved a lot, but worked great, and prevented any airway issues whatsoever!! We now have a plan for her big surgery in March, and I feel so much better going into that now. Being a nurse, I could give you all of the trach gymnastics they performed.....but I’ll restrain myself! ( I always want to share all of the ‘technical' stuff, but I know it sort of belabors the point)
The cleft surgery itself went so well, that the doc came into recovery and was like, “You know, this wasn’t nearly as extensive as her original repair, and she did so, so well, that you can go home today!” We had no idea that was even an option, but since she has an airway, (trach) and a means of eating, (g-tube), as long as her pain could be controlled with tylenol with codeine, we were good to go. So far, she has been very groggy, and told us she is hurting, but back to sleep once she gets her meds.....she hates her arm restraints, poor, poor girl, she is pitiful, and not wanting to wear them. We have to keep them on for three weeks....
I am blown away from today. The exact people that were suppose to be on her case today were there.....they all problem solved a pretty substantial issue for Lily, one that really compromised her safety with surgeries....and now that worry has been dissipated quite a bit. It will always be tricky, as long as she has a trach, but not like it has been.....
Now I know why the previous two dates were cancelled.
So, my big prayer requests are--pain control....and that Lily’s bladder will wake up from surgery....it keeps getting distended and she isn’t emptying all of the way. She did this last surgery, but since we are home now, I am a little nervous about that.....
God love you all, I am eternally grateful for your prayers. I just wish you all could have been there to jump up and down with me. All of the staff that put Lily to sleep were female....and they all loved Lily and came out to check up on her in recovery, each one very excitedly telling me how they all came together to overcome her obstacles today....I could tell they were all very happy and pleased, doting on our cutie girl. It is nice when you feel like everyone is so on your side....
I’ll update tomorrow!
__________________ Mom of four brave lads and one sweet lassie
Scenes From This and That
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aussieannie Forum All-Star
Joined: May 21 2006 Location: Australia
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Posted: Dec 18 2009 at 10:10pm | IP Logged
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4 lads mom wrote:
I am blown away from today. The exact people that were suppose to be on her case today were there.....they all problem solved a pretty substantial issue for Lily, one that really compromised her safety with surgeries....and now that worry has been dissipated quite a bit. It will always be tricky, as long as she has a trach, but not like it has been.....
Now I know why the previous two were cancelled. |
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Wow...wow, there is always a reason and prayers never left unanswered, I've seen this before with other dear people that have been prayed for..the things that look frustrating, or even a step backwards, turns out to be the most amazing answer to prayer...
You have my prayers for your dear, darling Lily...
__________________ Under Her Starry Mantle
Spiritual Motherhood for Priests
Blessed with 3 boys & 3 girls!
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guitarnan Forum Moderator
Joined: Feb 07 2005 Location: Maryland
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Posted: Dec 18 2009 at 10:11pm | IP Logged
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I am so thankful that the right team was on the job today!
I am praying for Lily (and for you, oh stressed-out Mommy!)...your lovely post makes me feel confident that everything will work out well. How amazing, to have everyone you trust be right there to help your precious daughter!
__________________ Nancy in MD. Mom of ds (24) & dd (18); 31-year Navy wife, move coordinator and keeper of home fires. Writer and dance mom.
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Mackfam Board Moderator
Non Nobis
Joined: April 24 2006 Location: Alabama
Online Status: Offline Posts: 14656
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Posted: Dec 18 2009 at 10:24pm | IP Logged
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Oh, I've been sitting here waiting for this update!!! Wow! I'm just sending up so many prayers of thanksgiving for the amazing and generous way God provided for little Lily today!!! Deo Gratias!!!!
Know that I'm praying hard about those arm restraints and pain management as well as for that little bladder to start working!!!
Sending prayers for you tonight, mama! What a day, huh? Go collapse on your husband's shoulder and exhale...with some chocolate! and prayers for all of you! Can't wait to hear how Lily is doin' tomorrow!
__________________ Jen Mackintosh
Wife to Rob, mom to dd 19, ds 16, ds 11, dd 8, and dd 3
Wildflowers and Marbles
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joann10 Forum All-Star
Joined: Feb 10 2007
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Posted: Dec 18 2009 at 10:41pm | IP Logged
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That is the best news I have heard in days!!! I am so happy to have this behind little Lily and now I will be praying for a speedy recovery, pain relief, and to have that little girlie peeing like a pro....
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Chari Forum Moderator
Joined: Jan 28 2005 Location: California
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Posted: Dec 18 2009 at 10:56pm | IP Logged
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THIS is very exciting news! I am so greateful to hear this!
Continued prayers for that sweet lass!
PS..I am always open to hearing any trach things you want to share!
__________________ Chari...Take Up & Read
Dh Marty 27yrs...3 lovely maidens: Anne 24, Sarah 20 & Maddelyn 17 and 3 chivalrous sons: Matthew 22, Garrett 16 & Malachy 11
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my6angels Forum Pro
Joined: July 20 2009 Location: Illinois
Online Status: Offline Posts: 154
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Posted: Dec 18 2009 at 10:59pm | IP Logged
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Praise God!! What wonderful news - I will continue to pray for Lily's recovery!!
__________________ God Bless!
Gina
Wife to Mark (1997)
Mama to Cecilia 10, Savanna 8, Leo 6, Neve 4, Fintan 2 and Aurelia 1 and baby due 9/2010
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Booksnbabes Forum All-Star
Joined: July 20 2008 Location: N/A
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Posted: Dec 18 2009 at 11:27pm | IP Logged
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God is so good! Praying during this time of recovery.
__________________ Wife to wonderful DH, mom to SIX beautiful gifts from God!
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Anne Forum Pro
Joined: May 21 2007 Location: Tennessee
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Posted: Dec 18 2009 at 11:35pm | IP Logged
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I am so pleased!! God's hands are present here. I will keep the prayers coming. God bless you all.
__________________ Anne in TN
WIFE to Brett (91)
MOM to Rebecca(97), Catherine (99), Grace (99), Stephen (00) & 2 Angels in Heaven.
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Maddie Forum All-Star
Joined: Dec 27 2005 Location: N/A
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Posted: Dec 19 2009 at 1:15am | IP Logged
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Just amazing, you were totally covered! Continuing prayers for sweet Lily as she recovers.
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mariB Forum All-Star
Joined: Dec 20 2006 Location: Vermont
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Posted: Dec 19 2009 at 4:24am | IP Logged
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So moved by your story and praying for your dear sweet Lily and a smooth recovery!
__________________ marib-Mother to 22ds,21ds,18ds,15dd,11dd and wife to an amazing man for 23 years
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