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KackyK
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| Posted: April 07 2009 at 10:39am | IP Logged
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Definitely still praying for Regina!
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KackyK
Mom to 8 - 3 dd, 5ds & 4 babes in heaven
Beginning With the Assumption
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SuzanneG
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Still praying for little, precious baby and the entire family during this time....
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Suzanne in ID
Wife to Pete
Mom of 7 (Girls - 14, 12, 11, 9, 7 and Boys - 4, 1)
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amyable
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Praying!
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Amy
mom of 5, ages 6-16, and happy wife of 
The Highly Sensitive Homeschooler
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Mary K
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praying.
mary-ny
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MaryM
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Keeping this in our prayers.
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Mary M. in Denver
Our Domestic Church
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SuzanneG
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Continuing to pray......
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Suzanne in ID
Wife to Pete
Mom of 7 (Girls - 14, 12, 11, 9, 7 and Boys - 4, 1)
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stellamaris
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Praying.
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In Christ,
Caroline
Wife to  dh 30+ yrs,ds's 83,85,89,dd's 91,95,ds's 01,01,02,grammy to 4
Flowing Streams
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aussieannie
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Offering memorares...any updates?
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Under Her Starry Mantle
Spiritual Motherhood for Priests
Blessed with 3 boys & 3 girls!
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Carole N.
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Offering prayers!
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Carole ... in Wales
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EmilyC
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I didn't realize that there was a post here about what was going on. I've not really had time to update my blog...most of my updates are on my facebook where I can keep it short.
Regina is still in the NICU. They had transfered her to a more local hospital, but now they want to send her back to Boston, because they can't figure out what's wrong here. Basically, they are telling us that she has a tiny cyst (or hole) in her brain. One dr. told us it was nothing to worry about, another dr. told us that they want to know what that part of the brain does. She still doesn't know how to eat. All her feedings are done through the feeding tube in her nose. They try to give her a bottle first, but she just doesn't know what to do with it. She also never seems to act hungry. They've asked me to stop trying to breastfeed because they think it's too stressful for her. They also said she has low muscle tone, and her blood work doesn't look right for a 2 week old--which could be due to the blood transfusion she had back in Boston.
Dh and I are exhausted from all of this--both physically and emotionally. We just want to bring her home. They are trying to send her to Boston this week, and we are going to ask that they fully explain why they want her there. If it's only for tests, then she shouldn't be in the hospital. We can drive her back and forth for tests. We'll do her feedings through the tube (and they're talking of giving her more "permanent" tube in her stomach for feedings because they don't think she's ever going to learn to eat by bottle or breast). I worry that she doesn't know that I'm her mama and not just another nurse. If they do send her to Boston, she might be over a month old before she can come home. And I won't be able to visit every day because it's an hour and a half just to get down there, then $20 for parking... 
Please pray that this is all resolved very soon and that we can bring her home.
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Emily,
Wife to Rob since 8/98
Mom to 4:
Sarah (13) Robbie & Riley (10) Regina (nearly 3)
My secular lit-based curriculum:
Build Your Library curriculum
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aussieannie
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Emily, thank you for that indepth update, I am so sorry to hear of your sufferings of you, the family's and especially little Regina. I'll be praying for a miraculous turn around in her health and wellbeing. May Our Lady hold you all through this trial and bless you all!
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Under Her Starry Mantle
Spiritual Motherhood for Priests
Blessed with 3 boys & 3 girls!
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Corry O
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Emily,
I can imagine the stress and anxiety you are feeling right now, especially with an unknown diagnosis for the baby. I will remember you and your family as we pray the Divine Mercy novena this week.
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Angi
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Hugs for you and your sweet baby.
If she does go to Boston, please find the Social Worker and patient advocate; they should at least be able to help with the parking costs.
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teachingmyown
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We will be praying fervently for your sweet Regina and for you all!
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In Christ,
Molly
wife to Court & mom to ds '91, dd '96, ds '97, dds '99, '01, '03, '06, and dss '07 and 01/20/11
Remembering Today
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snowbabiesmom
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Continued prayers for your sweet little one. THank you for the update.
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Kaleigh'97,Brett'00,McKenna'02,Reesie'04,Madelyn'07
+Luke'05,+Mark'08,+Karoline'08
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Nico'13;Zelie Oct'14, *Mary Joseph Jan'16
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TracyQ
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Emily,
I'm so sorry that you all have to carry such a burdensome cross. I'm sure this must be very difficult. Please be assured of my prayers at this time, and please be sure to update us as you can. May you feel the Lord's peace through this trial, and His comforting arms around you as He leads you through this.
Yours in Christ,
Tracy Q.
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Blessings and Peace,
Tracy Q.
wife of Marty for 20 years, mom of 3 wonderful children (1 homeschool graduate, 1 12th grader, and a 9th grader),
homeschooling in 15th year in Buffalo, NY
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jdostalik
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Praying mightily for sweet little Regina and you and your dh. I cannot imagine how hard this is for you all. We will pray our Rosary tonight for little Regina, may God grant her complete healing and comfort.
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God Bless,
Jennifer in TX
wife to Bill, mom to six here on earth and eight in heaven.
Let the Little Ones Come
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Maddie
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Continuing to pray for your little girl and your family.
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~Maddie~
Wife to my dh and Momma of 9 dear ones
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Mackfam
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Non Nobis
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Emily - I'm so happy for the update as I've been praying ever since you first posted your story on your blog. I can't imagine the stress and desire of your mother's heart to have your tender little Regina in your arms. I will pray that the Blessed Mother will cradle her especially during these times when you cannot. I'm praying as well for healing and answers to some of the outstanding questions, and of course that you would be able to bring your precious little girl home soon!
Many, many  to you, Emily!
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Jen Mackintosh
Wife to Rob, mom to dd 19, ds 16, ds 11, dd 8, and dd 3
Wildflowers and Marbles
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zookeeperof3
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Praying for baby Regina and you. I pray that everything will work out well for you and your family.
Blessings,
Kim
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4Real Forums : We Pray to the Lord
Topic: Baby Regina in Hospital-UPDATE 4/16 p.3
