Oh, Dearest Mother, Sweetest Virgin of Altagracia, our Patroness. You are our Advocate and to you we recommend our needs. You are our Teacher and like disciples we come to learn from the example of your holy life. You are our Mother, and like children, we come to offer you all of the love of our hearts. Receive, dearest Mother, our offerings and listen attentively to our supplications. Amen.



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Subject Topic: 9/1 UPDATE Baby Trach Post ReplyPost New Topic
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Chari
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Posted: Aug 28 2007 at 1:05am | IP Logged Quote Chari

Got you both covered in prayer, friend!

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Posted: Aug 28 2007 at 7:45pm | IP Logged Quote 4 lads mom

UPDATE:

Great news!!! Lily did great....she slept the whole morning, never woke up hungry, they got her IV FIRST TRY (miracle!!) went to surgery easily, the trach went in easily....and now she is sleeping peacefully on a vent for the night, while they keep her sedated and quiet for the night. I think once she is off the vent tomorrow, I can hold her. We got to see her face for the first time, looking straight at her, instead of peeking at her as she lay belly down....she is even more delicate and pretty, has a face that melts you!!!Best of all...she is breathing so well,on her back (she hasn't tolerated being on her back at all) without all of the obstructions and low oxygen readings....she looks so comfortable.

I did all of my crying before the surgery, because once I saw her so relaxed and breathing easily, pink and beautiful, I just thanked God that He gave me this beautiful daughter....

May God richly bless all of you for offering up so many prayers for a baby you haven't even seen!! I am humbled and so grateful for your faithfulness and kindness. GOD IS GOOD!!!

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JennGM
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Posted: Aug 28 2007 at 7:48pm | IP Logged Quote JennGM

Deo Gratias! I'm so glad you're more at peace and that she is doing well. Thanks for updating...more prayers for you and your dear one.

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cathhomeschool
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Posted: Aug 28 2007 at 9:05pm | IP Logged Quote cathhomeschool

Praise God! I did not have a chance to post yesterday, but I have been praying. Our prayers continue for your family, especially for Lily.   

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teachingmyown
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Posted: Aug 28 2007 at 9:20pm | IP Logged Quote teachingmyown

I am so glad that it went well! You all remain in my prayers!

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Carole N.
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Posted: Aug 28 2007 at 10:14pm | IP Logged Quote Carole N.

So glad to hear your good news! We will continue to pray.

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aussieannie
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Posted: Aug 28 2007 at 10:18pm | IP Logged Quote aussieannie

I am just so pleased to hear this good new for Lily, I will continue to pray!

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Posted: Aug 28 2007 at 10:30pm | IP Logged Quote bramasole

You have my prayers for Lily (and yourself). May Peace be with you both.
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Posted: Aug 28 2007 at 11:09pm | IP Logged Quote Angie Mc

God IS Good! Thank you for sharing your joy and my prayers continue.

Love,

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Willa
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Posted: Aug 28 2007 at 11:53pm | IP Logged Quote Willa

So wonderful that you are both breathing easier now. She sounds so beautiful!

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Chari
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Posted: Aug 29 2007 at 12:55am | IP Logged Quote Chari

Tears of gladness from me to you!

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Posted: Aug 31 2007 at 9:15am | IP Logged Quote 4 lads mom

HI Everyone,

First, thank you so much for your prayers for our little Lily. She got her trach like I said above, on Tuesday....she looked great the first day post op, but yesterday, she didn't look as good to me. Some of her white counts are elevated, and after a few other labs, they have decided to start IV antibiotics. She has had three IV's go bad now , and presently has one in her scalp. That is a heartbreaker to me...I can't stand that she has been stuck so many times, for labs and IV's...and now may have an infection....she is breathing faster, and a little less alert. I am trying not to panic, everytime the docs look at her, they are like, "well, her oxygen levels are good, she looks okay to me", they did say maybe she is in more pain now that morphine has worn off, and anesthesia...so they gave her another dose of morphine last night, and she rested comfortably, from what the nurse said. I wouldn't be so worried if we were back home, but I don't have the comfort level with this hospital that I did with the other, and I don't think they are as fastidious as what I am used to...big teaching university hospital to now a smaller private hospital....it is a different environment....I need prayers for peace and wisdom in this area, to know if God is leading us in a different direction with providers.
On a positive note....my leg is healing from the superficial blood clot that has been VERY painful...they started antibiotics, and I had a nice reaction to the first antibiotic...not fun...but hopefully this one will work.

I want Lily home so bad!!!! Our next hurdle is feedings, hopefully she can take off with a specialized bottle meant for kids with clefts, but her lack of jaw size will be a big challenge.

I pray for all of you and your intentions as well!
With much gratitude...

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KrisZ
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Posted: Aug 31 2007 at 9:30am | IP Logged Quote KrisZ

I think of and pray for you & Lily often during my days. I will continue to do so.
May God grant you wisdom, peace and tranquility.

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teachingmyown
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Posted: Aug 31 2007 at 10:22am | IP Logged Quote teachingmyown

Oh Dear, I was so happy and hopeful for you all the other day. Many prayers coming during this time. Prayers for healing, comfort and trust.

God bless you all!

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Posted: Aug 31 2007 at 10:28am | IP Logged Quote Donna Marie

We are all praying hard for Lily! God love her!!

Donna Marie from NJ
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SeaStar
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Posted: Aug 31 2007 at 10:32am | IP Logged Quote SeaStar

I will continue to pray, pray, PRAY for you and Lily. How hard this most be for you all... big hugs, too.

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Ruth
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Posted: Aug 31 2007 at 10:39am | IP Logged Quote Ruth

Many prayers for you and sweet Lily.

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ladybugs
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Posted: Aug 31 2007 at 10:41am | IP Logged Quote ladybugs

What a lovely name!

Praying for you!

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Cay Gibson
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Posted: Aug 31 2007 at 10:55am | IP Logged Quote Cay Gibson

4 Lads'Mom gave me permission to share this picture of Lily with everyone. I wanted to put it here instead of the blog but I couldn't fit it to size. I'm limited with my computer skills. But this way there will be many prayers being said.

It's so precious to see her sweet face as we pray.

She's beautiful. Simply beautiful.

Praying for all of you this weekend, dear.

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Posted: Aug 31 2007 at 1:35pm | IP Logged Quote teachingmom

What a beauty! She looks so alert in the picture . . . an sweet as can be!

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